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Shelbgt350

47d

12 years fighting cll. BTK inhibitors mutation. Now onto obinutuzimab and Venetaclax. A bit fearful of the cardiac side effects I’ve read about. Hoping Dr will start a low dose regimen and slowly ramp up.

Top reply
    • Michele.PatientPower

      23d

      @Slavena1958 @Slavena1958 How are you doing on your stem cell transplant? If my calculations are accurate you should be about 9 days into it? Please keep us updated here.

    • Michele.PatientPower

      38d

      Hi @shelbgt350! We were diagnosed around the same time as I too have had CLL for 12 years now. Thank goodness there are so many more treatments now. Have you started your Ven + Obin? Did they ramp you up / or will they be ramping you up? Please let us know and how you're doing.

    • Slavena1958

      44d

      12 years fighting strong is a great feat. Your story inspires me to keep on fighting too. I will be going for stem cell in 12 days and praying it will be a smooth ride. keep me in your prayers as I bear you up in mine. Stay strong soldier!

      • Michele.PatientPower

        23d

        @Slavena1958 @Slavena1958 How are you doing on your stem cell transplant? If my calculations are accurate you should be about 9 days into it? Please keep us updated here.

    • Chicoseven

      44d

      I have been on Gazyva and Venetaclax for 7 months. I had similar concerns too, because I had also heard of the cardiogenic side effects. My doctor addressed my concerns and also put me on consistent cardiac monitoring. From my experience, I understand where you are coming from because I have been there too. Please let your doctor address these concerns to soothe your heart's fears. Sending you warm thoughts and hope

      • Michele.PatientPower

        38d

        @Chicoseven @Chicoseven Have you had any cardiac issues since starting? What was it like when you ended your Gazyva (Obinutuzumab)? I was so happy when I was finished with that part of treatment!

    • boolyyy

      46d

      Good luck, how are you feeling? 🫶

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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