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First time posting on this app since I downloaded it yesterday: A bit worried how it'll all turn out but I've seen good things so far: I wanted to start with fibromyalgia because I want to approach possibly my therapist or PCP about access to mobility aids if I would need them in the future- since, often I consider getting them but I never know where exactly to start. Issue is: A lot of family members, namely my parents, don't like the idea of mobility aids, especially because I've never used one before extensively [Excluding injuries + the like] and they've seen me do "Just fine without one" And because of my fibro and just, massive amounts of pain my body is in on a day to day basis, I can't easily get a job, even if I were recommended one by a doctor, I'm not 100% sure they would get it for me. My parents are boomers: I don't mean that in the meme-y/insult way [Even if they do fall under that catagory], I mean that they were born in the baby boom generation: Both of my parents are over 60 and.. their ideas of physical and mental health often and frustatingly reflect that; They don't like to admit that things have changed, and they have a hard time adapting to things going on now that would have been taboo in their time. Example being; I'm a gay transguy, I've identified this way for 4-5 years now. They still don't call me by the correct name or pronouns. all of that being said: It's hard to find recommendations for physical and even mental health when, it's not 100% certain that anything will be done even if that advice is recieved. if that makes sense. Anyways: This app seems cool so far, even if I may get too much into detail, been told I do that a lot

    • CraftyCat

      700d

      The first thing I did was get a handicap placard. Some days I don't need to park in the handicap spots and other days my pain is so bad I can barely walk. I play it by ear. If I feel good I let other people have the close spots, if not they are for me :). My pain and ability can fluctuate a lot. There are good days and bad. I think that throws a lot of people off. How can I be couch bound one day but another day be able to garden.... Fibromyalgia is a bitch that's how. If you feel you would benefit from having a mobility aid, and would feel safer. You should get one. Even if you don't use it all the time, it might give you some peace of mind. Speak to your doctor, they can help you and show you how to use them correctly, and possibly get your insurance to help pay for it. (Also NB here if you're looking to chat with some chronically ill LGBTQ people) Hope this helps 💕

    • TeaThyme4Alice

      701d

      I don't think it's too much detail. I am struggling with the idea myself. I would really love a shower chair and cane. But when it comes to actually buying or using one...I tend to become frustrated with my own body or thinking 'maybe I'm not really... That sick? '

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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