Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

Astrid.flowers

11mo ago

Has anyone with narcolepsy tried modafinil? Does it work?

Has anyone with narcolepsy tried modafinil? Does it work for you?

Your answer

avatar

Amiwwa

2mo ago

I'm on Modafinil and I've been on it for over a year maybe two now. I feel live I've developed a resistance to it possibly. It worked amazing when I first started on it and now I take both it and Adderall and I still need daily naps to cope through my day.
avatar

KitKat1450

9mo ago

I was taking armodafonil (extended release version) but the side effects for me made it not worth it. My doc wasn’t willing to work with me to try to see if we could get it to be more beneficial- different release and dosage so he just took me off. It works on histamine and dopamine receptors- decreased my pain levels and helped my mood but I have chronic sinusitis, allergies, autoimmune issues, electrolyte imbalance so all of those got worse. Was like I had about 2 functional hours but the rest of the day horrible migraine and couldn’t breath. It was about the equivalent to taking 400mg of caffeine but didn’t last as long and had terrible crash. Also felt like when it was working I was in autopilot with the wrong heading.. not helpful. Increased sympathetic nervous system- shaky, dizzy, and harder to relax and eat. Caffeine feels like much cleaner energy source for me personally and is much easier to manage. When I was taking it I started adding magnesium glycinate and threonate, electrolyte pills, and caffeine (cushion crash drop), Tylenol severe sinus, and choline to help with side effects. My doctor said it was life changing medication for narcolepsy… that was absolutely not the case for me but everyone is different.
avatar

cogsquatparsnip

11mo ago

it is Adderall isn't available in Australia. I've tried armodafinll it is a bit cheaper but for me it didn't work as well. Alot of people also take ritillen.
avatar

SnowFoxFairy

11mo ago

I'm currently on a mix of Modafinil and Wakix, its night and day compared to before. My anxiety is nearly non existant and doing activities went from absolute torture to super achievable. The biggest drawback is it wrecked my immune system something wild and is actively at odds to any allergy medications (any histamine would be though)
avatar

SnowFoxFairy

11mo ago

If you have narcolepsy with cataplexy, a doctor will probably put you on a companion medication cause it can make the cataplexy worse. (It mixed with my POTS real bad and was causing fainting/collapsing) So as with any medication work with a doctor and let them know anything else you're on and why.
avatar

cogsquatparsnip

11mo ago

I've been on it for 16yrs the dosage depends on your weight and age I'm 60kg and take 3 for a box of 60 it cost me $100aud
avatar

Astrid.flowers

11mo ago

sounds expensive 😅 adderall does not work for me unfortunately so I think I’ll give it a shot

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc