626d
Hi! I’m 18 and i was diagnosed with narcolepsy without cataplexy when i was 16/17. i have little tiny bouts of cataplexy (loss of muscle tone in my legs when i laugh or get excited) but i wouldn’t say it’s anywhere close to the point that i need treatment for it. anyways, i know most people are diagnosed later in life than 18. my mom worked with a neurologist and was able to get me in for a sleep study because she was seeing a lot of narcolepsy patients with the same symptoms i was having. a lot of people with narcolepsy struggled before they were diagnosed because they were called lazy, and although my family doesn’t say those things now, i still feel really bad about myself sometimes and feel ashamed that i’m not as productive as i’d like to be. are there any ways that you’ve been able to handle or overcome these feelings? along with feelings of hopelessness- i often sit and think about how i’m afraid i’ll just be ‘too tired’ to do the things other people do (ex. having children, full time work, etc.) anybody have any advice?
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