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ThePooh

593d

Been asking for years for them to focus on my fatigue because I swore it wasn’t just normal fatigue years later finally got a sleep test and …Just got diagnosed with narcolepsy. Is it weird I wanna cry because I finally have answers for some of the stuff that’s been happing to me for years…

Top reply
    • Bridget53

      222d

      Not weird or uncommon I went years continuing to figure out what I was always so tierd. 4th grade a had a sleep study ans university of Iowa and they said I had sleep apnea little did we know they also put possibly narcoleptic on the paper but never said anything to us about it. So from 5th grade threw 8th grade my mom researched and researched. Then finally after serial loop got a mayo appointment where I had another sleep study where they thought it might be narcolepsy. Fast forward my mom found a doctor from standford university doing a pediatric trial something to do with spinal fluid and my hypocreten levels. Anyway has spinal tap local that same year came back a 0 which ment I had not rem sleep. Then flew out to meet him started xryem. By then I was just starting 9th grade. Soon after after several loops started taking xryem took me 2 years to finally catch up with all my sleep and be myself but then can all the anxiety and depression from being so lonely and left out and scard of how some people thought of me. Been on xreym since and looks wonders for me.

    • Bridget53

      222d

      Not weird or uncommon I went years continuing to figure out what I was always so tierd. 4th grade a had a sleep study ans university of Iowa and they said I had sleep apnea little did we know they also put possibly narcoleptic on the paper but never said anything to us about it. So from 5th grade threw 8th grade my mom researched and researched. Then finally after serial loop got a mayo appointment where I had another sleep study where they thought it might be narcolepsy. Fast forward my mom found a doctor from standford university doing a pediatric trial something to do with spinal fluid and my hypocreten levels. Anyway has spinal tap local that same year came back a 0 which ment I had not rem sleep. Then flew out to meet him started xryem. By then I was just starting 9th grade. Soon after after several loops started taking xryem took me 2 years to finally catch up with all my sleep and be myself but then can all the anxiety and depression from being so lonely and left out and scard of how some people thought of me. Been on xreym since and looks wonders for me.

    • Arashi96

      253d

      Not weird at all!! Absolutely right for feeling like that. I myself used to get really mad at myself and even hating myself for not knowing why I was having this sleeping issues. Until I found out why. It's such a relief and weight off your shoulders knowing it's not you who's wrong. We're just different from others. And different is not wrong at all, we just have to take care differently.

    • BreBee04

      272d

      Not weird in the slightest. When I got diagnosed I started sobbing to my mom "I don't have to feel like this anymore" repetitively because the thought of feeling slightly less exhausted made me that happy. I'm glad you have your answer! :)

    • erinjaeger

      550d

      This is so relatable. My parents and doctors always thought I was overdramatic when talking ab my fatigue and how it’s my fault because I don’t exercise enough. When I got diagnosed with narcolepsy I was so caught up in the things they told me over the years that I didn’t believe it. But yes finally having an answer is both relieving and upsetting because I’ll deal with this answer for the rest of my life 🥲

    • sleepyk12

      551d

      Not weird at all... I wish I could get my doctors to look into my sleep issues more seriously, as they've escalated significantly over the past year or so. I believe I have some kind of sleep disorder... but it would be so relieving even just to know what's going on!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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