See Alike in...

Alike App

Browser

Margot

908d

Has anyone taken low-dose naltrexone for nerve pain, mast cell activation syndrome or hEDS and found relief? If so have you had any bad side effects or found it helpful? I’m supposed to start it for all of the above.

Top reply
    • DancingZebra

      907d

      I had better success with it when I took 60 mg daily but I do well with LDN as well. I wish it was easier to get.

    • DancingZebra

      907d

      I had better success with it when I took 60 mg daily but I do well with LDN as well. I wish it was easier to get.

    • Tazzymax

      908d

      I don’t take LD. I take 50 mg. Works wonderfully!!

    • AeL

      908d

      I take it for my back pain which is either nerve or eds (or both) related. I have a high pain tolerance and I was literally crying at night before starting it. I still have bad pain some days but there are also days where my back doesn’t hurt at all. It’s incredible. But if I miss one dose the pain comes back almost immediately, at least I know it works that well. I haven’t noticed any side effects. I don’t know how/if it would help MCAS. I technically don’t have MCAS (or at least they can’t diagnose it as that) but I’m allergic to almost everything and it definitely hasn’t gotten better since starting LDN, it’s actually gotten worse. I highly doubt LDN caused that though.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion