See Alike in...

Alike App




I just want to bring awareness to every patient that is diagnosed FM. I am as well. As we know, FM does not present in ANY lab results. However, if you are having certain symptoms like, unable to lift 5 lbs, unable to lift yourself into a car, a flair different than normal that may include GI, THIGH AND/OR BICEP pain, and your labs DO show elevation of certain markers....particularly aldolase or Creatine Kinase (CK), this is NOT FM. This is a rare disorder often overlooked for FM but is a form of myositis. I suffered since 2016 WITH POSITIVE lab results and even the Mayo Clinic wrote all of my symptoms off as FM... now I am so sick and it has gotten to the point that my heart is involved now, my adrenal glands have suffered and I am far more ill than I ever was with FM and Lupus combined. All along my bloodwork was being dismissed because I was diagnosed with FM and my symptoms looked like FM. Myositis is a debilitating disorder that one progressively gets worse with. It is not something anyone wants their doctor to miss as mine had done since 2016. I just wanted to bring awareness to show how easy it is be overlooked when one has FM when it can be a very serious, progressive illness. Please educate those you know with FM to look out for those 2 labs, especially if they have thigh and bicep pain. Please look at your labs, remember elevation of aldolase or creatine kinase. Those 2 labs are significant.

    • Peonies


      I am so sorry that this has happened to you. It sounds really tough. You’re kind to give us a heads up.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to's unique features.

Find people who are
experiencing a similar
medical reality

100% Free

Download Alike for the full experience


View All


night sweats





Anxiety (Including GAD)