Struggling with Myasthenia Gravis: Seeking Advice

Everyday I struggle with what you described.I am scheduled for a thymectomy in September. If you ever want to talk I’m here as well!

Oh my I have mg and chronic anxiety and my doctor says the anxietyakes the symptoms worse that I need to have a better control of the anxiety ,but it's hard ,I feel the same way as you ,talking takes a lot of breathe ,walking ,sometimes and I can't cook and do things I did before. Unless I have someone to help me ,I don't like asking for help I am in Texas and go to Baylor the big hospital but they are taking forever to get me in to see the doctor ,what else can people like us do ,I want to get better

I wish I could be positive and say I improved after my thymectomy but I didn't. I'm about the same as before, only mestinon doesn't help my weakness. I'm seronegative and pretty treatment resistant, so I may be a unique case but just throwing it out there. Hopefully things go better for you.

Had it 3 yrs now. Tired, weak, poor vision. Been getting IVIG (infusion of white cells). Helps and in the next 3 days will get some energy but will wear off in a couple of weeks. Had an insurance problem but suppose to be back on track next week. At an all time low now. Missed almost 2 months. Said that they were going to add something else to the mix. Soliris once a week injection but now they said they are getting good results with something else. Haven't said what yet but they said they are switching their patients to it cause it is a shot every 8 weeks instead of each week. Will keep you posted. I think a thymonectmy ? Is a last resort.