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Mgsnowflake

Updated 11mo ago

My Journey with Myasthenia Gravis: A 20+ Year Diagnosis

I’ve had myasthenia Gravis from childhood and I was diagnosed after a 20+year journey to figure out what was causing my unexplainable muscle weakness and fatigue. how long did it took for your diagnosis?

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Bobby13

2y

45 years
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Mgsnowflake

2y

wow I can imagine how frustrating it was
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Bobby13

2y

Did you do any surgery?
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Mgsnowflake

2y

no I dint need any surgery I don’t have the thymoma I stared with my symptoms at like 7 years old. Weakness and fatigue can’t walk long distances
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Jules14

2y

My symptoms started around age 12 and I was finally diagnosed with MG on my 27th birthday last week. I was started pyridostigmine and am on day 2 of taking it. What medication were you prescribed when diagnosed?
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PushnThru

2y

The only reason it took 10 days because I already have Lupus and the specialist knew it was another disease
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cabbage

2y

I have done every test there is for a diagnosis of mg but the. Thing is I don't have antibodies for it ,so how are they supposed to treat me if I have. A reaction. To all the meds they have tried ,what's next

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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