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Marilumoo

633d

On May 19th, 2022 I had my very first seizure. It was grand mal, and a fairly severe one at that. I was at work when it happened, and I work for a local hospital, so luckily I have some idea of what it looked like/what happened while I was unconscious. Symptoms during seizure included; Eyes open, twitching 3-4min grand mal Turning blue/lack of oxygen HR 170 Symptoms 24 hrs leading to seizure included; Nausea Congestion Broken sleep night before Lethargic Irritable Symptoms immediately post seizure included; Confusion Inability to identify my co-workers Inability to tell EMS where I was (at work) Inability to remember my fiances last name Inability to sit up/stand/walk on my own Symptoms first week post seizure included; Off balance Twitching/flinching Short term memory loss Struggles with basic problem solving I have zero personal history and zero family history of seizures. When the seizure started and I fell unconscious, I was just sitting at the nurses station doing my paperwork. There was a lot of external stimuli as I work in psych and had a few patients feeling especially irritable and loud at that time, but this wasn't anything I hadn't experienced before. I have no current life stressors, but it is possible that past life stressors accumulated subconsciously and have something to do with this episode. I was especially irritable before the seizure started as I was feeling unwell (reference symptoms 24hrs. leading to seizure above). Metabolic causes crossed my mind as with my nausea, I was not eating much of anything. The day before this seizure, I was told in therapy we would be starting EMDR to face and heal from past trauma, which was difficult for me to hear. As of right now, the neurologist I've seen cant find a proper cause for this grand mal seizure. Ive had an MRI, CT scan, EEG, two blood draws, two urinalysis, and one blood sugar check. No abnormal electrical activity was found, but supposedly this isn't unusual with it being post-seizure. I have been told we must now wait for me to have another seizure, IF I have another seizure, before we can continue to a diagnosis. At this time I am to notify the doctor of any new symptoms in the future, and have a follow up appointment in August. I have been given an emergency medication that would have to be administered by someone else, but otherwise I'm on my own. Do you have any thoughts on all of this? Any facts? Anything you can tell me or guide me to that could help? Thank you in advance.

Top reply
    • Alliekatt

      633d

      I don't have seizures personally but have had a number of child clients have them regularly and that is so terrifying. I really just wanted to throw you some love, and also applaud your tracking skills. But it is ridiculously frustrating to have a specialist (more than a GP) throw their hands up and say 'Well IDK but here's some drugs that probably won't help.' Hang in there and keep doing what you're doing, because you're doing a great job!

    • Alliekatt

      633d

      I don't have seizures personally but have had a number of child clients have them regularly and that is so terrifying. I really just wanted to throw you some love, and also applaud your tracking skills. But it is ridiculously frustrating to have a specialist (more than a GP) throw their hands up and say 'Well IDK but here's some drugs that probably won't help.' Hang in there and keep doing what you're doing, because you're doing a great job!

    • Sunshine_0309

      633d

      I have had psuedoseizures similar to a grandmal and been to countless neurologists all not able to find anything wrong. My most recent neurologist said that i can have psuedoseizures that mimic real ones. Now i have had them so bad that i forgot my children existed and didn't understand why i was fat. I lost over a decade of time and it took days for it to all come back. They couldn't find any brain damage or reasoning as to why. So you are not alone. I've had seizures at the hospital in front of nurses and doctors and still have no further explanation. My psychiatrist says it is due to my panic disorder and anxiety that my brain feels the need the reboot because it has had too much to function.

      • Marilumoo

        633d

        @Sunshine_0309 that breaks my heart 🥺 I can only imagine how traumatic this has been for you. All I can hope is that I don't end up that bad...

        • TheJubilantJake

          633d

          @Marilumoo Wow I'm glad you're okay! Sounds serious. 😥 I am almost 29 but have had mal seizures in the past. I believe my mom has only told me of one when I was just 1-2 years old. I don't remember it (of course). Oh wait... ... ... I did have one other seizure whilst in rehab not long ago. When I was 28. That time my mom said my whole body became stiff like a board (weird??!!) I don't remember that either.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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