See Alike in...

Alike App

Browser

Snoopy619

711d

Hey everyone. This’ll be a long one, hoping to find people who can relate to this rare confusing condition. In 2021, 2 weeks after a vaccine I developed extreme leg pain and extemetity weakness. It got so bad at night I couldn’t sleep. I eventually went to the ER because of the pain and I couldn’t run/jump barely get out of bed. They ran a ton of blood tests and discharged me. I had a lot of positive inflammatory tests (ANA, sed rate, etc.) I’ve seen rheumatologists with no diagnosis but then saw a neurologist who ran an EMG which came back very abnormal in my motor nerves. It was clinical weird because I am fully active now except I will get flare ups of leg pain and body weakness but nothing how it was at the ER. I have GD1a antibodies which are linked to GBS. I declined the spinal tap because I am honestly reluctant to get it since I am clinically better. He believes I had a guillain barre type of reaction to the vaccine. I deal with mild leg pain most days. It feels like painful strings going down my legs. My balance and strength isn’t what it used to be but I try to workout and do yoga as much as I can since that helps me physically and mentally. I’m extremely active so this can be depressing to me but I am thankful it didn’t harm my body more. Would love to hear any input from others who have experiences guillain barre syndrome.

    • Rollin

      634d

      I’m not sure if you can read my comments the I posted to another individual with GBS. Let me know if you can read those comments from me to him. I go by “Rollin”

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion