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qveenofthecastles

497d

Did your doctor rule out MS before diagnosing you with Fibro?

Top reply
    • Arqaena

      145d

      No. I was diagnosed with fibro years before they investigated anything else. But they never looked into MS, which is frustrating because I definitely have symptoms

    • Arqaena

      145d

      No. I was diagnosed with fibro years before they investigated anything else. But they never looked into MS, which is frustrating because I definitely have symptoms

    • MsDaisyMae

      153d

      I had two neurologists to rule out MS.

    • sorenachy

      493d

      Nope. Just looked at where I hurt and my other symptoms and said fibro

    • Cazz69

      494d

      Nop it took nearly 5 years for them to diagnose me with fibromyalgia few hospitals emissions couldn’t understand why my legs and my lower back and my hands wasn’t working kept falling dropping things as it’s to painful to hold anything couldn’t feel my legs can’t get out of bed many times I have come short where my flareups happens with no warning where I have to go up on stairs on my bottom coz I can’t feel my legs and pain as I have chronic pain syndrome came with it but I was having the symptoms years before , Covid it then on top of that everything stopped appointment being cancelled everything 2 years ago I was diagnosed with emphysema with copd which I can’t get out of bed for days as it is effects my fibromyalgia I have pdst I am a prisoner in my own body it’s difficult to explain to people how bad it is they think I being stupid and it’s in my head it’s so nice to know that there are people are similar to me it gets very lonely it’s coming more common on top of that I wasn’t getting the right treatment until I was diagnosed I have carers to help me get dress and shower me due to fibromyalgia and my lung disease and other issues

    • TeacupOfFrogs

      495d

      Yes! Because the symptoms are similar and MS gets worse if untreated I insisted on seeing a neurologist and being tested. My GP was annoyed but you can literally sue/report them for malpractice if they deny testing for a condition that gets worse when untreated and you turn out to have it, because then they become responsible the damage done by their negligence. ---not that I threatened my Dr. I didn't. 😂 I just insisted and reminded her that any time wasted could be irreversible damage being done if it was that or something similar.

    • Red914

      496d

      Yes, I had a couple MRIs to rule out MS. My dad has MS, so we were worried. I was also tested for lupus.

    • Cazz69

      496d

      I been diagnosed with fibromyalgia about 3 years , the flare up a nightmare I had 5 children and I would rather give birth than go threw this took me a long time to accept it as it’s permanent that was hard to take in and to learn about it I got it head to toe I am on crutches next step to a wheelchair as it effects my legs which I can’t get out of bed due to it also what came with it was joint pain syndrome which my legs drop out of its socket I am waiting to have some injection in my back I did have a clean driving license which I had taken off me due to this health problems to this I can’t even have a kettle coz the flair up don’t give you a time or a day when it happens I come short couple times burnt my hands when I lifted a kettle I just dropped it , even my mobile phone I struggle to hold it coz it’s so painful simple things people take for granted that the frustration part of it all

    • JustRachelle

      497d

      Nope. I got my diagnosis because he said I didn’t have lupus. 🤷🏽‍♀️ that was 8 years ago. I never got any test done exact ANA panel. But I’ve been seeing a neurologist who thinks she ruled it out. However I’m getting worse so we are doing more testing for other things.

    • KhronicKoder

      497d

      Yes I had MS ruled out before they looked into fibro and CFS

    • faerywyrm

      497d

      My Dr ruled out a lot of stuff when I was first diagnosed. He was sure it was fibromyalgia, but he wanted to make sure I didn't have anything else going on.

      • Cazz69

        494d

        @faerywyrm my doctor told me with fibromyalgia there something else goes with fibromyalgia like I have joint hyper mobility syndrome

    • Bambi1993

      497d

      Nope nore did they rule out Lupus both MS and Lupus are often not looked into before a Fibro Diagnosis. Personally I don't think Drs can be bothered to run more tests etc I feel they just diagnose fibro when they either dont know or just can't be bothered looking into other conditions.

      • Gnatty

        493d

        @Bambi1993 100%%%%%%%

      • qveenofthecastles

        496d

        @Bambi1993 I'm sorry you're experiencing that 😔

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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