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stardust_1999

301d

Hey everyone. I was discussing some of my symptoms with a friend of mine. Her mom has MS, and said that a lot of my symptoms match hers. I was wondering if someone that has MS and is comfy with it if they could reach out to me and let me compare symptoms with you and tell me their story about their journey and how they got diagnosed? sorry for all the words. The brain fog is horrible today. thank you In advance!

Top reply
    • LukeAM

      218d

      I was diagnosed with relapsing/remitting multiple sclerosis at 26. We didn't have a clue that was coming. They originally thought that I had a stroke. My journey to diagnosis took the better part of one weekend. My mother took a lot longer for her diagnosis which was kind of an it can't be anything else so it must be MS. Which it was the early 90s and they did find plaques on her MRI.

    • LukeAM

      218d

      I was diagnosed with relapsing/remitting multiple sclerosis at 26. We didn't have a clue that was coming. They originally thought that I had a stroke. My journey to diagnosis took the better part of one weekend. My mother took a lot longer for her diagnosis which was kind of an it can't be anything else so it must be MS. Which it was the early 90s and they did find plaques on her MRI.

    • Moonpuffs

      242d

      Mine started with a seizure i believe, and just kept snowballing from there. Would love to chat 🤗

    • kitaboo

      245d

      I had persistent nausea, the Neuro put in the order for me to get a MRI. Low and bre hold they found deymlation in it. Here I am today.

      • kitaboo

        245d

        @kitaboo Brain MRI

    • LadiB

      246d

      Well....I searched for more help after staring at a computer at work n "watching the letters move". I then was found to have optic neuritis.

    • skaterhelen

      250d

      I have MS. I have several things I deal with without mine. I'll be glad to chat

    • Sandoll

      252d

      I lost feeling in my leg from knee down for 1 day!! Lots of tingling in legs and pain also chronic fatigue as well as misdiagnosis of fibro. See a MS specialist only! Not just a neurologist

    • LukeAM

      256d

      I was diagnosed at 26. My first known symptoms were stroke symptoms. They put me in the hospital over a weekend. During the course of that weekend they decided it was MS. I got out of the hospital and still could barely walk. Now almost 17 years later I am still doing what I can.

    • KayCeeBee

      296d

      I had numbness and tingling on the right side of my face, but everyone’s MS is different

    • CaliS

      299d

      The neurological symptoms that led to diagnosis— i had an episode where my speech slurred and I had a problem with my motor functioning, I couldn’t type. The MS diagnosis was unfortunately confirmed by both MRI and spinal tap/lumbar puncture. I also live with CFS/ME and these were new symptoms. First go with a neurologist didn’t go well, said it was ‘stress’ and I needed to just breathe more (!) I advocated for a good neurologist to do proper testing.

    • KimberlyA

      300d

      I was diagnosed w relapsing/remitting ms at the age of 46. I am now 64. I used to have terrible fatigue. I no longer do. A major change in diet helped tremendously with the fatigue as well as other symptoms

      • LadiB

        246d

        @KimberlyA wat type of diet do u eat now

    • Imitrexqueen

      301d

      I had terrible fatigue! That was my main problem.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user shared their experience with MS diagnosis: "I would say get brain scans done. That helped me get diagnosed with rrms quickly. The symptoms are all very diverse, but it sounds like you might have MS based on the symptoms you shared. I'm sorry this is not very helpful, but I hope that helps!" Another user mentioned they are being treated for sjorgens disease and sle while trying to rule out MS. They said their doctor recommended seeing a neurologist for brain scans and testing due to worsening neurological and cognitive issues.

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