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willownyx

455d

Has anyone got any advice about having an MRI? I'm considering asking to have one because I've been tossed around different specialists for ENT and hearing problems, along with joint and mobility problems, and nobody is coming to any solution or even hinting about what could be wrong. Someone suggested to check if it's anything to do with neurology and stuff etc etc and suggested I ask for an MRI to see if they can see any problems that way?

Top reply
    • willownyx

      439d

      @hello.its.me thank you so much!! :)

    • hello.its.me

      439d

      I think an MRI is probably the best way forward. My niece has EDS and suffered with symptoms like these and that was diagnosed after some scans and a blood test, though it takes some fighting with the doctors to get there. Persevere and speak to specialists, do any tests you think may help and I hope it gets sorted for you

      • willownyx

        439d

        @hello.its.me thank you so much!! :)

    • unfortunatecrisis

      455d

      Has an MRI been suggested by a medical professional or by a friend/family member? If by a professional, such professional should be able to order an MRI for you, or send a letter to your GP recommending you get an MRI. If this advice is not from a medical professional, first find out if the individual has something specific in mind that they believe an MRI would be the best thing for you. Likelihood is that if your friend had suggested you get an MRI, it's probably something they have witnessed or experienced themselves. If you believe the advice has merit, contact your GP and have a discussion on whether they think its best for you or whether they do not believe it would be beneficial. I have had 3 MRIs, the one I had on my brain did not yield any results but that doesn't mean it wasn't worth while. It took diagnoses off the table to narrow down what my problems were for. At the end of the day, you know your body best and if you believe you have something wrong you likely do, but that doesn't mean an MRI will reveal anything which is something you must be prepared for. I hope you get sorted and if you do get an MRI, that it yeilds results that are helpful.

      • willownyx

        455d

        @unfortunatecrisis this is super helpful to hear thank you! It was suggested by a family member who used to work in a hospital for 10-13 ish years, and I think it would be helpful for narrowing things down, I think it might be worthwhile to make some progress because at the moment nothing is happening at all. I appreciate your advice and I'll definitely talk it over with a doctor first and see what they think, thank you!!

    • Livingasazebra

      455d

      Also a big thing I forgot to mention is that you can’t move because u need to be still for them to get the images

    • Livingasazebra

      455d

      I’ve had multiple due to my dandy walker cyst and hydrocephalus. It’s very noisy and cold. They give u earphones or headphones (you can choose) the headphones are tighter because of the head frame ur head goes into but the music u can choose and it’ll relax you. There will be a frame that goes over ur face and connects to the bit ur head is leaning on and this has a mirror so u can see the end of the tunnel. You’ll feel the bed move but it’s not very unnerving or anything. They might put a pillow under ur legs but you can’t have any blanket. You’ll have a buzzer to press at any point if u need a break for whatever reason. They might talk to you to make sure you’re ok or tell u what’s happening (some do some don’t) depending on the hospital ur in (this is more children’s tbf) u might be able to watch a film on the screen behind.

      • willownyx

        455d

        @Livingasazebra This is really helpful to know what to expect if I end up having one, thank you so much!! :)

        • Livingasazebra

          455d

          @willownyx no problem I’m glad I could help 💜

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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