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chronicallyfab

820d

Hi bendy buddies 🤗 My EDS diagnosis is new, are there any mobility aids you use that help relieve symptoms and did you purchase them online or through your doctor? 🙏

Top reply
    • wreckedwill2017

      787d

      I count on my gelly wrist and thumb braces, (search amazon for gel wrist support), and I love kt tape for my bigger joints (alcohol helps remove if your skin is as prone to tearing as mine is) and I actually love the dollar tree mini freezer pack and dollar tree neoprene wrist brace/support. Those are some of my favorites I need something for my elbow that helps (damaged my bursa in a fall a few weeks ago and it had been unstable but haven’t been able to tape it because of swelling.

    • wreckedwill2017

      787d

      I count on my gelly wrist and thumb braces, (search amazon for gel wrist support), and I love kt tape for my bigger joints (alcohol helps remove if your skin is as prone to tearing as mine is) and I actually love the dollar tree mini freezer pack and dollar tree neoprene wrist brace/support. Those are some of my favorites I need something for my elbow that helps (damaged my bursa in a fall a few weeks ago and it had been unstable but haven’t been able to tape it because of swelling.

    • kactus

      814d

      If you want to train your own service dog good breeds are Collies, Golden Retrievers, Labradors, German Shepherds, but you do not need to limit yourself to these breeds my current service dog is a Havanese and Bichon Frise mix who I rescued and he's been the best service dog I've ever had. Previously I had a Rottweiler Lab mix and she was awesome

    • YouCantSeeMyPain

      814d

      Yea I imagine there would be a large wait list. Thanks for your help, it’s something we are considering

    • kactus

      814d

      @YouCantSeeMyPain, you can go through trainers to get a service dog but this is expensive and has a long waitlist, there are charities such as NEADS who help people get service dogs but that has an even larger waitlist. You can train your own service dog, I've been training dogs all my life and trained my own service dog to help me with my EDS and Epilepsy. I find it better to train my dogs for my personal needs rather than someone else training them because they get to know your triggers and needs better. Let me know if i can help

    • YouCantSeeMyPain

      814d

      @chronicallyill how did you get a service dog?

    • chronicallyfab

      816d

      *forearm crutches

    • chronicallyfab

      816d

      Thanks everyone! What are your go-to mobility aids? I was thinking about purchasing firearm crutches but wasn’t sure about the pressure it would put in my shoulders and palms.

    • Lailla

      816d

      I have purchased all of mine off of Amazon. It's cheap and convenient

    • Chronicallyill

      819d

      I have a service dog who aids in mobility. As well as a walked and wheel chair when needed

    • Tomato

      819d

      Hey there, I purchased my cane at a local store. After I checked it online I saw it on Amazon for half the price 😢

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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