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Lil_Orca_Light

754d

Has anyone had a rheumatologist that just completely missed something of importance? I found out from my new one that my body was rejecting my previous treatment because I have some weird anti-drug antibody in my system. Shouldn’t my last rheumatologist have noticed this?

Top reply
    • Lil_Orca_Light

      750d

      @MrsFuller luckily I got a diagnosis pretty quickly. But I feel like my 1st rheumatologist dropped the ball a lot. She never noticed that my body was rejecting the treatment. And because she only did one series of X-rays at the start she never saw that the psoriatic arthritis was starting to deteriorate some of my joints. My podiatrist pointed out last year before Thanksgiving that it was in my feet. Showed me on an X-ray he took of my broken foot… that was my sign to find a new rheumatologist.

    • MrsFuller

      751d

      My 1st rheumatologist was this old white guy who should have just retired with his ideologies... but when I walked in he laughed and asked why I thought I thought I had autoimmune issues. Well I had 2 already and alot of unexplainable pain. He dismissed me a sent me back to my primary. I was so mad and embarrassed as was my primary since they're of the same group/building. She apologized and sent me to an arthritis center 2hrs away where I was instant diagnosed with fibromyalgia, then RA, then PsA....but yeaaaah there was nothing wrong with me lol

      • Lil_Orca_Light

        750d

        @MrsFuller luckily I got a diagnosis pretty quickly. But I feel like my 1st rheumatologist dropped the ball a lot. She never noticed that my body was rejecting the treatment. And because she only did one series of X-rays at the start she never saw that the psoriatic arthritis was starting to deteriorate some of my joints. My podiatrist pointed out last year before Thanksgiving that it was in my feet. Showed me on an X-ray he took of my broken foot… that was my sign to find a new rheumatologist.

    • SMX

      753d

      I love my rheumatologist but in my lupus support group I heard horror stories about how patients can be treated by the one specialist that should understand what we go through- which extends to not considering that we have rarish reasons for feeling certain ways like why you weren’t responding to your treatment. I hope with your new rheumatologist you’re able to find a treatment plan that provides some relief💕

      • Lil_Orca_Light

        753d

        @SMX my new rheumatologist seems wonderful so far! I haven’t started my new treatment yet due to insurance dragging their feet. And it stinks because I’ve been off any treatment since January. I’m really feeling it. All the pesky flare ups.

        • SMX

          753d

          @Lil_Orca_Light oh my gosh that’s so frustrating. It’s so absurd because no one would want to take any of these medications unless they have to AND the people who take them need them. I have my fingers crossed you can get treatment soon

    • Seabeastie20000

      754d

      This is why second opinions can be really important

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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