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JustRachelle

565d

I THINK I WAS MISDIAGNOSED! let me explain.. please chime in to this conversation. 💜 So in 2015 my blood work from my primary care doctor shows positive ANA and positive RNP antibodies. I was referred to a rheumatologist.. saw him in 2016 he said it was fibromyalgia and that he didn’t think I had lupus or rheumatoid arthritis.. (as if that’s the only disease/condition there is) .. he redid bloodwork but NEVER the RNP antibodies.. that’s weird because why wouldn’t he order that one again but ordered the others.. this time it shows a negative ana.. okay cool.. The diagnosis was fibromyalgia (and he states the symptoms I’m having and the ones I wasn’t having) .. all of this time I’ve been dealing with “fibromyalgia” …fast forward to last October I went to a new primary care doctor she did blood work .. ANA came back positive at this time I was in HELL I actually thought I was dying.. she redid the test 4 weeks later ANA was negative 🤷🏽‍♀️ okay … told me to see a rheumatologist and neurologist.. did both.. neurologist said it wasn’t nothing neurological told me to see rheumatologist.. saw the rheumatologist and she did blood work.. ANA negative…. BUT she did RNP antibody test and it was HIGH .. 3.4 and the normal range is 0.0-0.9 😯🙄 she said it was a “false positive” .. diagnosis = fibromyalgia Google research because if we don’t fight and advocate for ourselves who will.. everything I could find says that RNP antibodies with no other antibodies means Mixed Connective Tissue Disease also known as MCTD.. 🧐🧐 I recently (last month in the mist of seeing this new doctor) I developed Raynuads Phenomenon 💁🏽‍♀️ which is apart of getting a MCTD diagnosis and I just found this out… and all the other symptoms I’m having that are considered fibromyalgia are known in MCTD.. but in order to get the MCTD diagnosis you have to have high RNP levels 😳 which I have but I’m being told it’s a false positive! Of course I don’t want a horrible diagnosis but I do want the CORRECT diagnosis… it’s almost like it’s being overlooked and I’m not understanding why!! If you see this antibody in my blood and it’s BEEN in my blood why ignore it and call it a “false positive”! I want to live a normal life I want to LIVE … if it is MCTD and nobody is listening then what ???!!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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