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Has anyone been told they have endometriosis before to then find out it’s something else? I’ve had painful periods, chronic pelvic pain and dyspareunia for many years, an 8cm endometrioma showed up on a scan which was due to be removed, but on a second scan it went away so never went for surgery. Yesterday I had diagnostic laparoscopic surgery for endometriosis/pelvic pain and they found no endometriosis at all! Doctor said it’s unlikely to be that as the cause of my pain and I had loaded bowels and inflammation so I should look down the digestive/IBS route. I have had constipation throughout my life but previously thought of it as a separate issue. Is there anything else it can be? I’m so so tired of the pain!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user shared that they were told they had endometriosis, but later found out they had a polycystic ovary and possibly PCOS. Another user mentioned that they were initially diagnosed with endometriosis, but it turned out to be pelvic inflammatory disease caused by intestinal bacteria trapped in their reproductive area. It's also noted that sometimes endometriosis isn't visible during surgery, depending on the surgeon. Some users suggested seeking a second opinion or consulting with a specialist.

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