Have they excised the endometriosis yet

I have Kyleena, and it changed my life. Having it placed was hell- I had plenty of painkillers in me and it was still a 10/10 pain. The reason my dr wanted me to do Kyleena was because it is the smallest iud available so she said it would hurt the least to place. Even though it was a horrible experience getting my iud, I plan on having iuds for the rest of my life. Before iud, I bled daily for 1.5 years and I couldn't tell the difference between cramps and kidney stones because of the severity of the pain. After iud, I have bled for less than 10 days in the past 2 years- and my endo pain is 80% gone. Those perks will not be exactly the same for every person with an iud, but for me it was very much worth it & I wish I had gotten it sooner.

I know that IUDs can be great for some people, but I had a really bad experience with mine. I basically had constant aching pain with random excruciating stabbing pain in my cervix a few times a day for several weeks. That died down, but I still had regular period pain throughout the month for months and I was bleeding most days during that time period. The bleeding was much lighter than my usual without birth control, but I didn't like bleeding every day. We also confirmed that the IUD was placed correctly and treated my bacterial vaginosis, with no improvement to my pain. After maybe 4 months, I switched to the Skyla (which is smaller), hoping for less pain, but the pain and bleeding wasn't better, so I eventually gave up after another couple of months. Before getting an IUD, I had never had stabbing pain in my cervix, but now, even 2 years after having the IUD removed, I still sometimes have pain in my cervix. For context, I've also tried Depo shots and the Nexplanon implant and had similar issues with near daily bleeding with minimal improvement to pain. But I have a friend who didn't bleed the entire time she was getting Depo shots, so every body is different. Just wanted to share my experience.

Avoid if you can

They seem to go pill..coil...laproscopy. I spoke to many in hosp where the coil just made it worse. I said no to it n now waiting 4 surgery

It's common for people to be recommended to try everything before surgery as surgery should be a last resort but having had coils make matters worse when I still had endometriosis deposits and also had them help with PCOS pain when I had all the Endo deposits removed; I would agree that having the Endo removed prior to having the coil is better, you can also request to have the coil fitted whilst you are under for the Endo removal so you don't have to deal with the pain of the fitting which can be awful - I had mirena fitted alongside having a laparoscopy and Endo and PCOS treatment and the recovery process was much the same as when I only had surgery as well as when I only had a coil fitted. Some people can become anaemic on mirena and if you have been borderline anaemic or have anaemia it might be worth trying a Jaydess coil as it is a smaller coil and provides less hormones so is less likely to send your hormones to the opposite extreme of where you are now. I really hope you get the help you need and can find relief from the pain ❤️ ADDITIONAL BONUS INFORMATION FOR ANYONE WHO WANTS TO KNOW (TRIGGER WARNING SURGICAL CONTENT): People with red hair naturally even just with a faint undertone of it can require more anesthetic than others to be fully under - I unfortunately learnt this after having a surgery which I remember everything from them opening me to closing and being unable to move, see or tell them I was aware. If you have natural red hair and colour it differently be sure your surgery team knows you naturally have red hair prior to any surgical procedures.

I have the copper wire coil had my new one fitted three years ago it lasts 10 years, but hasn't helped my periods at all! I'm waiting for my emergency appointment with my gynecologist to have it removed and have further investigation done.

Be careful getting IUD if you still have a lot of endometriosis lesions, it ended up making my situation worse. You can always try but don’t suffer forever if it isn’t working - trust yourself and get it out if it’s not going well.