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Leigh_Ann

2y ago

How long did it take to get diagnosed with migraines?

Hi, I’m wondering how long it took people to get diagnosed? I had “traditional” migraines in my 20’s, but they went away. Then, 3 years ago, I started having episodes. It took nine months and 12 doctors to finally get diagnosed. I honestly thought I was dying.

Your answer

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celestite

1y ago

took me around 2 years for a migraine diagnosis, doctors kept saying it was a sinus headache until i had a hemiplegic migraine and ended up in a&e, got referred to a neurologist and got diagnosed at 14.
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Juju121

1y ago

have you had any other attacks (hemiplegic) rather than migraine itself? I’m scared it will happen again and lead to a stroke 😥
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Juju121

1y ago

I have never had headaches in my life I’m now 44. I went to my Dr with stroke like symptoms and sent me straight to A & E a CT scan showed a bleed on the brain. Thankfully a MRI showed this wasn’t the case. I seem to now get dreadful headaches during the night.
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Cos

1y ago

I literally diagnosed myself and told my last doctor she had to look it up it’s insane how rare it is
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Joker907

1y ago

I've had 3 TIAs.. your seizures...were they sudo seizures?
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ekko_inyoheart

2y ago

Mine took me being ambulanced to the hospital for a possible stroke and an over two month long migraine. I'm sorry you had to go through that but now you have answers and can start treatment
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Leigh_Ann

2y ago

Thanks. I was initially misdiagnosed as having had a TIA as well s as multiple “silent seizures”. That misdiagnosis definitely made getting properly diagnosed a longer process
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katzgoddessa

2y ago

Mine took about 5 years and count all the military docs I cycled through as on 4 doctors before they would admit that it wasn't just "bad headaches" but general migraines and hemiplegic migraines. So don't feel bad, you are not alone. Traditionally it takes them longer to believe and diagnose women than men but it all takes time and it's much easier fr doctors to take your money, give you 2 Tylenol and come back in 3 months if it not better. Doctor speak for "I don't give a shit what's wrong with you".

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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