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Leigh_Ann

688d

Hi, I’m wondering how long it took people to get diagnosed? I had “traditional” migraines in my 20’s, but they went away. Then, 3 years ago, I started having episodes. It took nine months and 12 doctors to finally get diagnosed. I honestly thought I was dying.

    • celestite

      476d

      took me around 2 years for a migraine diagnosis, doctors kept saying it was a sinus headache until i had a hemiplegic migraine and ended up in a&e, got referred to a neurologist and got diagnosed at 14.

      • Juju121

        474d

        @celestite have you had any other attacks (hemiplegic) rather than migraine itself? I’m scared it will happen again and lead to a stroke 😥

        • celestite

          474d

          @Juju121 since my first hemiplegic migraine i only had 2 more but they were nothing like the first one, only mild versions but i knew what was happening. as far as i’m aware having a hemiplegic migraine won’t suddenly turn into a stroke, having them just means that the risk of stroke in the future is a little higher than normal so no need to worry about that. i would suggest asking for a neurologist referral and seeing if you can try a preventative medication (i’m on amitriptyline for mine and haven’t had a migraine for a long time). there are also other medications such as triptains but they shouldn’t be used in people with hemiplegic migraines so it would be best to discuss with your doctor. like i said, i can assure you having one again won’t suddenly turn into a stroke so no need to worry about that. best thing is to ask for a neurology referral and trial and error preventatives and see which one is best for you. best of luck! 🤞🏻

    • Juju121

      477d

      I have never had headaches in my life I’m now 44. I went to my Dr with stroke like symptoms and sent me straight to A & E a CT scan showed a bleed on the brain. Thankfully a MRI showed this wasn’t the case. I seem to now get dreadful headaches during the night.

    • Cos

      600d

      I literally diagnosed myself and told my last doctor she had to look it up it’s insane how rare it is

    • Joker907

      606d

      I've had 3 TIAs.. your seizures...were they sudo seizures?

    • ekko_inyoheart

      688d

      Mine took me being ambulanced to the hospital for a possible stroke and an over two month long migraine. I'm sorry you had to go through that but now you have answers and can start treatment

      • Leigh_Ann

        687d

        @ekko_inyoheart Thanks. I was initially misdiagnosed as having had a TIA as well s as multiple “silent seizures”. That misdiagnosis definitely made getting properly diagnosed a longer process

    • katzgoddessa

      688d

      Mine took about 5 years and count all the military docs I cycled through as on 4 doctors before they would admit that it wasn't just "bad headaches" but general migraines and hemiplegic migraines. So don't feel bad, you are not alone. Traditionally it takes them longer to believe and diagnose women than men but it all takes time and it's much easier fr doctors to take your money, give you 2 Tylenol and come back in 3 months if it not better. Doctor speak for "I don't give a shit what's wrong with you".

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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