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HappyBeach

828d

Looking to meet people that are dealing with things similar to me. What has worked for you and what hasn’t?

Top reply
    • TokingRainbow

      707d

      Plaquenil & D3 10,000 iu. Has helped with major rectal bleeding & inflammation of my whole digestive tract.

    • TokingRainbow

      707d

      Plaquenil & D3 10,000 iu. Has helped with major rectal bleeding & inflammation of my whole digestive tract.

    • Sarahwags

      787d

      Oh, and I did Rituxan infusions to try to slow the scleroderma. I don’t think that has worked, but technically I have to give it more time. Also take hydroxychloriquine, but I was on that for almost a year and saw no change. I haven’t had relief w scleroderma but the Raynauds got so much better on those meds

    • Sarahwags

      787d

      Hi there. I was just diagnosed within the past year. The disease is really aggressive and active, so I haven’t had a med change things yet. Cell sept is supposed to be the big one to help, so I’m in the highest dose of that, but it can take a while. For the Raynauds, nifedipine and tadalfadil have been life changing. I almost had fingers amputated from non healing wounds and they got circulation going. It all just came on so fast and it’s so scary. What are your symptoms?

    • BJA

      794d

      I haven't found anything that works 100%

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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