See Alike in...

Alike App

Browser

Piano_Player

833d

I would like to know your experience with a meningioma. Mine is behind left eye affecting sight nerves and cradling carotid. I am a little overwhelmed. Thank you for sharing if you choose to.

Top reply
    • Mamasboys

      789d

      @Piano_Player yes I absolutely agree 🙏

    • Piano_Player

      790d

      Here is a follow up from 1 month ago. I saw amazing neurosurgeon-surgeon at MDAnderson in Houston. I had 5 proton radiation treatments. I will have neuro ophthalmologist appointment for further sight tests in 2 weeks; I have seen a neurologist for tests on forgetfulness/short term memory episodes. All will give me an update/overview in June. This is following a craniotomy 6 years ago in a different hospital that should have been avoided. Do everything you can to see the most EXPERIENCED neuro-surgeons in your particular problem. It makes a world of difference.

      • Mamasboys

        789d

        @Piano_Player yes I absolutely agree 🙏

    • Cindy_Mckinney

      796d

      My brain back to lightest is making me have stroke like symptoms headaches pain in my body and blurred vision

    • Cindy_Mckinney

      797d

      Well I hit seizures with this condition

    • Cindy_Mckinney

      797d

      Is this a rare condition

    • Cindy_Mckinney

      797d

      What are the symptoms

    • Cindy_Mckinney

      797d

      👍 I have brain vasculitis and I'm trying to find out as much information about it as possible

    • Mamasboys

      832d

      It’s procedure to put you on anti seizure meds, antibiotics, steroids for a while so that messed me up a bit with my stomach and just feeling weird. I had a therapist who came to my hime and a nurse for a few weeks and eventually I was able to do most things normally.

    • Mamasboys

      832d

      The recovery wasn’t as bad as I thought given that I had brain surgery. I was able to sit up and slowly walk the room. I was kept in hospital for 6 days which is longer than most. I had some issues with my right eye not opening and vision in that eye was distorted.

    • Mamasboys

      832d

      Hi I’m sorry for what your going through I know how difficult it is. I was diagnosed in 2017 it was an incidental finding so of course shocking. Went to 3 different neurosurgeons and radiation oncologists. Most recommended a craniotomy. I said I wanted to wait and watch. Mine is also attached to my optic nerve on right side though. I really had no side effects but I did always suffer from migraines and headaches since childhood so who knows? So in 2018 I started having eye problems and getting vision issues. Neurosurgeon said it’s time to do craniotomy to save my vision. So I did it and they couldn’t remove entire tumor due to location, they got about 80% out. I was told it was the size of a marble.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion