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Peanut1T

841d

anyone ever tried anything else besides DDAVP/Desmopressin acetate??? I'm afraid I can not live without this medication and now I can't afford the out of pocket expenses even with insurance. I've been on this medication since I was 7 and my body doesn't know how to live without it~ excessive thirst and urine without this medication.

    • D1ddy

      837d

      I’m looking for a healthy replacement for all of my medicine

    • D1ddy

      837d

      Yeah I take Desmopressin Acetate. It’s really for me to not urinate all day and every time I have something to drink. I had a brain tumor called Craniopharyngioma which causes me to take Desmopressin, Levothyroxine, Hydrocortisone, Xyosted, and growth hormone

      • Peanut1T

        836d

        @D1ddy I am on Cortef, Desmopressin acetate, and Euthyrox.

      • Peanut1T

        836d

        @D1ddy what is Xyosted, if you don't mind me asking??

        • D1ddy

          836d

          @Peanut1T xyosted is basically a testosterone injections that I have to take once a week. Xyosted is the brand name but it’s basically testosterone injections since I don’t produce enough testosterone ever since my surgery

      • Peanut1T

        836d

        @D1ddy I also had a craniopharyngioma when I was 7 years old and we are on similar medications.

        • D1ddy

          836d

          @Peanut1T my brain tumor was near my pituitary gland so it affected things like my testosterone, growth hormones, puberty, and stuff like that. I had my brain tumor surgery at the age of 11.

    • Preschool_Teacher

      841d

      I also take baclofen

      • Peanut1T

        840d

        @Preschool_Teacher isn't that for muscle spasms?? I am trying to find out if there's an alternative to DDAVP/Desmopressin acetate that someone may have used for Diabetes Insipidus. 👍

    • Preschool_Teacher

      841d

      Yes I take it

      • Peanut1T

        841d

        @Preschool_Teacher also I've been on this medication since I was 7 years old and my body doesn't know how to live without it. I've tried reducing my prescription to make it last longer, but suffer excessive thirst and urine when I do

      • Peanut1T

        841d

        @Preschool_Teacher have you ever tried anything else for it?? I can't afford the out of pocket expenses even with insurance and am looking for suggestions and advice. I've taken the oral pill and the nasal spray but the nasal spray gave me staph infections.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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