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Peanut1T's Post
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Peanut1T

2y ago

Looking for alternatives to DDAVP/Desmopressin acetate

anyone ever tried anything else besides DDAVP/Desmopressin acetate??? I'm afraid I can not live without this medication and now I can't afford the out of pocket expenses even with insurance. I've been on this medication since I was 7 and my body doesn't know how to live without it~ excessive thirst and urine without this medication.

Your answer

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D1ddy

2y ago

I’m looking for a healthy replacement for all of my medicine
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D1ddy

2y ago

Yeah I take Desmopressin Acetate. It’s really for me to not urinate all day and every time I have something to drink. I had a brain tumor called Craniopharyngioma which causes me to take Desmopressin, Levothyroxine, Hydrocortisone, Xyosted, and growth hormone
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Peanut1T

2y ago

I am on Cortef, Desmopressin acetate, and Euthyrox.
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Peanut1T

2y ago

what is Xyosted, if you don't mind me asking??
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Peanut1T

2y ago

I also had a craniopharyngioma when I was 7 years old and we are on similar medications.
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Preschool_Teacher

2y ago

I also take baclofen
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Peanut1T

2y ago

isn't that for muscle spasms?? I am trying to find out if there's an alternative to DDAVP/Desmopressin acetate that someone may have used for Diabetes Insipidus. 👍
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Preschool_Teacher

2y ago

Yes I take it
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Peanut1T

2y ago

also I've been on this medication since I was 7 years old and my body doesn't know how to live without it. I've tried reducing my prescription to make it last longer, but suffer excessive thirst and urine when I do
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Peanut1T

2y ago

have you ever tried anything else for it?? I can't afford the out of pocket expenses even with insurance and am looking for suggestions and advice. I've taken the oral pill and the nasal spray but the nasal spray gave me staph infections.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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