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707d

I have some sort of medical mystery going on with POTS-, Ehlers-Danlos-, and chronic fatigue-like symptoms. No one can diagnose it, and my MRI is clear. Has anyone had a variety of debilitating symptoms, and what was your eventual diagnosis?

Top reply
    • JustRachelle

      706d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

    • Krissyann

      706d

      Hi! Do you have trouble with sleep and did you have a virus such as Herpes in the past? If yes I would push towards getting an ME/CFS diagnosis. You must have sleep trouble to have ME.

      • stars

        705d

        @Krissyann i have a diagnosis of idiopathic hypersomnia, and i’ve had a lot of repeated infections, but no EBV that i know of. EBV is definitely on my radar since a close family friend has it chronically. thank you!!

    • Osnapitzkat

      706d

      I am labeled medically complex and have yet to really get answers. My main diagnosis is Behçet’s disease it’s rare so doctors aren’t really sure how to handle it.

    • JustRachelle

      706d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

      • stars

        705d

        @JustRachelle see, i think i’m going to get diagnosed with a functional neurological disorder (AKA it’s all in your head). i have periodic stroke-like episodes but no concerning markers 😑

        • Osnapitzkat

          705d

          @stars I have seizure like but they labeled me with functional neurological disorder and it’s so frustrating

      • NikkiJay

        706d

        @JustRachelle ❤️YES! That's my issue currently. Pain and inflammation in all my joints only brought on by extreme fatigue and I get labeled "fibro" and prescribed ibuprofen 🤦‍♀️

      • Osnapitzkat

        706d

        @JustRachelle I’m laughing because this does seem to be doctors go to when they don’t know what they else it could possibly be.

    • colorfulcrouton

      707d

      Perhaps get a full blood work done. Not just the standard physical but more in depth including all vitamins and minerals. Could be a deficiency.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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