See Alike in...

Alike App

Browser

Help! Seeking Diagnosis for Debilitating Symptoms

stars

577d

I have some sort of medical mystery going on with POTS-, Ehlers-Danlos-, and chronic fatigue-like symptoms. No one can diagnose it, and my MRI is clear. Has anyone had a variety of debilitating symptoms, and what was your eventual diagnosis?

3

9

9

Fibromyalgia (FM)

Herpes Simplex

Vitamin D Deficiency

Ibuprofen

View all
Top reply
    • JustRachelle

      576d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

      4

      Reply
      Chat
    • Krissyann

      576d

      Hi! Do you have trouble with sleep and did you have a virus such as Herpes in the past? If yes I would push towards getting an ME/CFS diagnosis. You must have sleep trouble to have ME.

      1

      Reply
      • stars

        575d

        @Krissyann i have a diagnosis of idiopathic hypersomnia, and i’ve had a lot of repeated infections, but no EBV that i know of. EBV is definitely on my radar since a close family friend has it chronically. thank you!!

        0

        Reply
    • Osnapitzkat

      576d

      I am labeled medically complex and have yet to really get answers. My main diagnosis is Behçet’s disease it’s rare so doctors aren’t really sure how to handle it.

      1

      Reply
    • JustRachelle

      576d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

      4

      Reply
      • stars

        575d

        @JustRachelle see, i think i’m going to get diagnosed with a functional neurological disorder (AKA it’s all in your head). i have periodic stroke-like episodes but no concerning markers 😑

        0

        Reply
        • Osnapitzkat

          575d

          @stars I have seizure like but they labeled me with functional neurological disorder and it’s so frustrating

          0

          Reply
      • NikkiJay

        576d

        @JustRachelle ❤️YES! That's my issue currently. Pain and inflammation in all my joints only brought on by extreme fatigue and I get labeled "fibro" and prescribed ibuprofen 🤦‍♀️

        0

        Reply
      • Osnapitzkat

        576d

        @JustRachelle I’m laughing because this does seem to be doctors go to when they don’t know what they else it could possibly be.

        2

        Reply
    • colorfulcrouton

      577d

      Perhaps get a full blood work done. Not just the standard physical but more in depth including all vitamins and minerals. Could be a deficiency.

      2

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion