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737d

How did you get diagnosed and how long did it take?

Top reply
    • Rave

      708d

      Biopsy took one week

    • Rave

      708d

      Biopsy took one week

    • annebell

      724d

      I think stress can make it clear up

    • Smash

      725d

      My test came back negative for lupus.. but I have all the symptoms and the biggest is the butterfly rash and swollen joints. So I’m so confused

    • Rave

      729d

      It took me one week to get diagnosed. My dermatologist took a biopsy of my scalp and found out I had discoid and then from there they did blood work which showed I the ANA strands indication of lupus.

      • annebell

        727d

        @Rave wow I hoped you get better

        • Rave

          724d

          @annebell I’m better

    • MissMarcy

      734d

      My lupus, took 8 years from my first face butterfly rash before being diagnosed.

    • vcr

      736d

      it didnt take too long fortunately, after months of feeling miserable i finally decided to go to the doctors February of 2020 and then got told to go to the ER and i was in the hospital overnight for anemia and needed a blood transfusion because my hemoglobin was at 5.2 and then after that they sent me home. then in july 2020 i went to to doctors office and they said my hemoglobin was at 6 and told me to go to the ER and they check my hemoglobin again and it was at a 5 and they said they couldnt help me and that they had to send me to a bigger hospital which was an hour away so they took me in an ambulance and once i got there my hemoglobin was at 3.5 and they were all panicking and was in so much pain because they couldnt find a blood match to mine because of the weird antibodies in my blood and the next morning they gave me another blood transfusion . and after a week of being in the hospital they came to the conclusion i had lupus

    • kab

      736d

      Mine has been a long drawn out process over years

    • Cubantia

      737d

      Didn’t take long for me, sorry forgot one part of your question- thanks to brain fog! 😣

    • Cubantia

      737d

      My internal medicine doctor sent me to a RA doctor. He did his tests and sent me to get biopsy of a rash I had all over my neck, chest and back. Came back positive for SLE Lupus - 2019! I haven’t received any additional information since then since I have it I am scared to be out and about now with Covid-19. Hopefully I will schedule some appointments soon, I have been to urgent care and ER for medicine when I cannot take the inflammation and pain.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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