See Alike in...

Alike App

Browser

Bless

744d

I know we are all different. but how did you know you were progressing? Do you get depressed alot ?

Top reply
    • Smee

      439d

      I was told by GP around 10 years ago that I had fibromyalgia. I've noticed more symptoms above and beyond Fibro and now believe it's MS. I have a brain scan referral, so going from there. I have experienced what I believe to be the MS hug, Pins and needles in hands, arms, feet and legs, bit of numbness in leg or patches but not much. Hard to know/remember alot so.... Itchy hands and fingers as well as feet, ankles and legs. Brain fog and headaches (random parts of my head) with blurry vision. Fatigue has been part of my life for 20 years but it's gotten worse. Heaps of other stuff. My question is, I've heard that lesions need to be on the MRI to confirm diagnosis, BUT I've also heard that's incorrect. So what's the latest news on this please? I'd also appreciate chatting with someone who has my symptoms that has been diagnosed. Thanks ladies

    • Smee

      439d

      I was told by GP around 10 years ago that I had fibromyalgia. I've noticed more symptoms above and beyond Fibro and now believe it's MS. I have a brain scan referral, so going from there. I have experienced what I believe to be the MS hug, Pins and needles in hands, arms, feet and legs, bit of numbness in leg or patches but not much. Hard to know/remember alot so.... Itchy hands and fingers as well as feet, ankles and legs. Brain fog and headaches (random parts of my head) with blurry vision. Fatigue has been part of my life for 20 years but it's gotten worse. Heaps of other stuff. My question is, I've heard that lesions need to be on the MRI to confirm diagnosis, BUT I've also heard that's incorrect. So what's the latest news on this please? I'd also appreciate chatting with someone who has my symptoms that has been diagnosed. Thanks ladies

    • Blue_Star

      742d

      This is a great question! I wonder the same thing. My symptoms are getting worse, in fact, they’ve been slowly getting worse since diagnosis… like, I don’t even know what remission is really suppose to mean. I’m grateful for no NEW lesions, but of course we all know that doesn’t mean profession isn’t happening. It’s so scary. I’m always here to talk to anyone about this subject! 🧡

    • jdog54321

      743d

      Yes, but I'm starting to get slow speech now. I think that might be a sign. 🤔

    • Sarajessica

      744d

      Yes

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion