spookyspoonie

239d

is there anybody else out there with moderate-to-severe ME/CFS who wants to make a friend?

Myalgic Encephalomyelitis

Lethargy

Fibromyalgia (FM)

acute lethargy

Generalized pain

View all
  • TrebleNurturer

    239d

    I have fibromyalgia and chronic fatigue. I’m not sure what ME is. But yes, hello!

    • spookyspoonie

      239d

      myalgic encephalomyelitis (ME) is the sciencey name for chronic fatigue syndrome

      • RyeRyeBread

        186d

        [just some notes for anyone seeing these and wanting to be educated lol] ME has different diagnostic criteria, and some believe it's a different disease all together or possibly just on the "worse" end of the ME-CFS spectrum. CFS has a higher chance of being misdiagnosed since the criteria doesn't require the main symptom that distinguishes this illness from others - Post Exertional Malaise (PEM). The CFS criteria is also more lax, whereas the ME criteria is stricter. There is also ME/CFS criteria (where you're diagnosed with the acronym of both, that's sort of a middleman - not too lax but not very strict either --- lots of debates over them in the community) Also, important to note here for others that "chronic fatigue" is not the same as "chronic fatigue syndrome" (CFS) or Myalgic Encephalomyelitis (ME). Chronic fatigue is a chronic *symptom*, one that can occur with numerous illnesses, such as mononucleosis, the flu, depression, etc. CFS or ME, is a debilitating chronic illness with vast symptoms in all body systems (neurological, immune, gastrointestinal, endocrine, etc.)

  • MeeB333

    237d

    I have a very long list of medical conditions, including CFS, & a lot of them cause similar symptoms, so I am basically exhausted & in pain 24/7/365…! So, I know how you feel!! :-/

  • RainbowPrincezz

    237d

    CFS here. Would love a friend. 💕

  • LemonSnicker

    219d

    I’m new, I have Fibromyalgia (and questionably CFS?) I’d love to hear more from people who deal with similar things! :)

    • JustRachelle

      197d

      same! I would love to chat anytime

  • PurpleGiraffe

    187d

    Tired and in pain every day. Would love to meet a new friend.

  • ForgottenFroggie

    187d

    id love to!!

  • ItsErin

    187d

    Yeah, I'd love to!

  • franniepeach

    186d

    Yep 👍 I'm struggling with both.

  • RyeRyeBread

    175d

    I wish there were more ways to group up with fellow ME/CFS people ☹️ We be needing friends ;^;

    • spookyspoonie

      174d

      Saaaame

      • RyeRyeBread

        174d

        someone make a group chat or a facebook group lmao maybe a discord, idk something 😂😭😭💜

  • murdermittens

    173d

    I have eds and chronic fatigue syndrome. I'd love to.

  • kmkrs

    173d

    FM & chronic fatigue 👍

  • ClaireAngel

    158d

    New here, suffer with ME and Fibromyalgia, would love to meet more people who understand x

  • Wednesday_7

    156d

    Hey, I have me/cfs and idk if it’s like moderate-severe, but it is certainly debilitating and sucks ass.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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