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Saillea

672d

I'm wondering if anyone else with MCAS has memory problems?? I know my fibro causes cloudy thinking but I'm wondering if the MCAS makes it worse or maybe has it's own memory issues? It's just not normal for every day words...such as "table" or "postal worker"....to completely slip my mind...is it?

Top reply
    • MCADBox

      291d

      Brain Fog is a real thing. LDN has helped me along with a new binder that has helped me with histamine as that is the mediator I have the most issue with.

    • MCADBox

      291d

      Brain Fog is a real thing. LDN has helped me along with a new binder that has helped me with histamine as that is the mediator I have the most issue with.

    • Bruxine

      561d

      Yes, my short term is damaged I also can become non verbal during reactions or attack episodes. 😔

    • Lhamo

      621d

      I definitely do. It has a lot to do with the underlying causes of your MCAS though. If it’s gut related then it will definitely do that. If not, then maybe not so much.

    • Shinshin

      662d

      Not really

    • Shinshin

      666d

      Hi,I get memory fog a lot and have noticed it’s from MCAS

      • Saillea

        662d

        @Shinshin Really? Have you noticed anything particular being a memory fog trigger??

    • MeeB333

      668d

      Yeah, don’t beat yourself up about it!! I have Fibro, too, as well as MCAS & Lyme, plus co-infections, so this happens to me all the time! But, I saw (& commented on) your other post, & I think it’s probably bad for you right now because you are unintentionally triggering yourself by ingesting things (and/or using topical products) that you are sensitive 2… :/ Hope you can isolate/identify & eliminate your triggers to minimize symptoms!!! <3 P.S. Have you ever been tested for Lyme? Btw, u are more likely to get a false negative than false positive for Lyme test, & not definitive, or totally reliable & accurate, since, after the acute/initial phase of infection, bacteria (& any co-infections, which can include viruses, parasites & fungi) can form biofilm cysts and hide throughout your body. This is why it will oftentimes not show up on test because they are not circulating in your bloodstream…But, still recommend that anyone with MCAS get tested for Lyme because it is a very common comorbidity & it is what triggered my MCAS. Good luck 2 U!!! <3

      • Saillea

        668d

        @MeeB333 Oh wow...hon... I'm so sorry. I have been tested for Lyme several times and was negative. This whole thing is just scary. My fiance is more concerned about my memory than I am but his worry triggers my worry. I have no idea what my triggers are yet but I'm trying to sus them out. Is it awful that I don't want to leave my house because of this?? It's just so scary.

        • MeeB333

          616d

          @Saillea - Thanks for your kind words. I do appreciate it. :) But, just F.Y.I.(& for anyone else who may need to read this), getting a negative Lyme test, unfortunately, does NOT mean that U do not have Lyme! With the way the test works, U are much more likely to get a false negative than a false positive(almost impossible)…If U do not catch Lyme bacterial infection in the acute phase, & the disease is chronic, it will likely no longer be circulating in your blood, as it has already set up biofilm cysts throughout your body, & is, therefore, no longer detectable in your bloodstream, leading to a false negative diagnostic test result. Lyme-literate doctors often have to base diagnoses on clinical symptoms and history, due to this fact, & it is also worth noting that co-infections carried by ticks (bacterial, viral & fungal) are often not even tested for because tests don’t even exist for some of these infections, so you may have a number of other compounding issues that are even harder to identify, much less treat!! Unfortunately, I know all of this from my own personal experience with Lyme+co-infections & it isn’t an easy road to travel, but just keep educating yourself & looking for answers. Some things work for some people & not others, so your treatment regimen should be tailored to your own specific needs, & no one protocol works for everyone because of these complexities.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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