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Naty

836d

I was diagnosed with MCAS two days ago, but they never test me for anything more than scratching my skin and asking millions of question. Is that normal?

Top reply
    • AraS

      814d

      Tryptase and 24hr urine are only “positive” in 15% of MCAS sufferers. Plus - you have to be in a flare for tests to be “positive.”

    • AraS

      814d

      Tryptase and 24hr urine are only “positive” in 15% of MCAS sufferers. Plus - you have to be in a flare for tests to be “positive.”

    • bravoholic

      815d

      mine figured it out by elimination of a lot of other things and then a colonoscopy/endoscopy that ultimately led to a definite yes.

    • Naty

      832d

      Yes I’m sure they didn’t test me for anything. My doctor said he was sure that I had MCAS based on all the questions and e scratch test. I’m taking antihistamine pills and is healing a little tiny bit

    • bojanglesbiscuit

      834d

      They should test 24hr urine for histamine metabolites, blood serum tryptase, and prostaglandins. I was told to take lots of otc antihistamines for a month to see if any symptoms improved.

    • Hypochondriac

      834d

      Usually skin MCAS diagnosis involves skin biopsy. Are you sure they didn’t take a skin sample for biopsy?

    • StrongZebra85

      834d

      My allergist had me do a 24 hour urine collection as well as blood work and allergy tests. That’s how I was diagnosed. His treatment has been helping me so much. I’m surprised you didn’t get blood work or urine collection.

    • MCADBox

      835d

      Are they treating you? Because the good docs treat you without testing. The functional doctor who diagnosed me only did a few tests as the mediator tests are not always conclusive and are expensive. I didn’t actually do the other tests until over 6 months later which came back normal. My blood histamine level was my only test that came back abnormal at 110 and now it’s a 8.4. Normal range is under 1.4 I think.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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