Preparing for my Mayo Clinic visit

Avery- one thing I forgot was that everyone wanted to know when I slept, how long, and how good it was. The importance of being organized 😂😂 I should take my own advice with that

Hey Jenny- my rheumatologist has a pretty neat thing he does. He has run an “avise” box test on me a few times to check almost all my levels for specific autoimmune issues. I know it tests for Arthritis and Lupus

Thank you so so much that is so helpful. I’m going to make a binder of everything so it’s all together!!

My immunologist is collecting all of my records and is sending them to mayo. You can do it yourself but I have so many records it was too much. We haven’t heard anything and we don’t know when I am going @xojennypennyxo

I’m curious, doctors don’t seem to know what’s wrong with me and have me on the fence for both Lupus and MS for the last 10 years. How do you get seem by Mayo Clinic? What would be the steps and is it covered by insurance or is it out of pocket? Sorry for the questions on top of your question but I’m just curious. Thanks a bunch!

I have not been to Mayo but I have been to Cleveland- I had a day of back to back specialists with tests in there as well. My biggest piece of advice for that to run smoothly would be to now start logging all kinds of things. What you eat and when, when you have symptoms, exercise, stress, bowel movements if that applies literally anything they may ask you about with your lifestyle. Detailed family history as well. My advice as to what to take is a notebook and pen so you can write down things as they are said to you and questions as you think of them. The more organized you can be the better off you’ll be. I take a small craft project to work on and keep my busy to any appointment where I may wait and worry. This can be a really nerve racking process and I hope that getting a diagnosis will bring you some amount of comfort so they can start working to ease your discomfort! I hope I answered a little bit of what you need to know, and I hope I can help if you have further questions