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teeclark

Updated 11mo ago

Looking for advice on managing PNES and FND

hiya! just got my diagnosis of psychogenic non epileptic attack disorder and FND, hoping to find some ideas on here on how to manage these conditions :)

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ohswear

1y

biggest thing ive learnt is pacing yourself is key. as much as you want to continue life as normal,, take things slow and dont overdo things. find out what is manageable for you to do in a week,, and add in rest days. slowing myself down and reducing major stressors has massively helped my symptoms :)
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teeclark

1y

thank you for replying! i’ve just moved house to live closer to family so i can have more support and rest more, im hoping that will help me pace myself and alleviate my symptoms as much as i can! defo gonna take this advice on board, thank you!
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Jillian18

1y

Yes! Support is huge! Its so difficult to understand and cope when you dont have much support. ♡♡
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Dionysus429

1y

Could I ask, where did you start for getting those diagnosis? I'm looking for help where to start to get my possible non epileptic seizures diagnosed and my probable fnd also diagnosed. I hope that makes sense ^^'
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Art_therapy

1y

Try to figure out any triggers that make your symptoms worse. For example flashing lights seem to trigger attacks for me. They may not be obvious and no one really warns you about them
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Library

1y

For me, PTSD caused my FND and the thing that helps me most is EMDR. It was hard to find a practitioner that takes my insurance. I tell everyone in my life that it's been truly life-changing.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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