Managing Myasthenia Gravis Symptoms: Seeking Advice

Rainbowdino

672d

My doctor highly suspects that I have MG and I’m in the midst of testing. I’m looking for any advice on how to best manage my symptoms (significant weakness and fatigue). I think that the heat is making it worse.

Acute lethargy

Myasthenia Gravis (MG)

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Jimjr

665d

Heat and sunlight knock me down so sun glasses and a/c are my best friends. Started new treatments with a drug called soliris and vision and my energy are much better. Double vision almost gone and keeping busy during the day.

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cabbage

671d

Heat does make it bad ,so be very careful of that ,I know. It does cause. I can't go outside on hot days and can't really tolerate alot of heat ,at night I have to keep my air conditioner on 70 and I have two fans pointing on me a night time ,hope you get well soon

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Managing Myasthenia Gravis Symptoms: Seeking Advice

Rainbowdino

Jimjr

cabbage

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Managing Myasthenia Gravis Symptoms: Seeking Advice

Rainbowdino

Jimjr

cabbage

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