Managing Myasthenia Gravis Symptoms: Seeking Advice

My doctor highly suspects that I have MG and I’m in the midst of testing. I’m looking for any advice on how to best manage my symptoms (significant weakness and fatigue). I think that the heat is making it worse.

Your answer

Jimjr

2y ago

Heat and sunlight knock me down so sun glasses and a/c are my best friends. Started new treatments with a drug called soliris and vision and my energy are much better. Double vision almost gone and keeping busy during the day.

cabbage

2y ago

Heat does make it bad ,so be very careful of that ,I know. It does cause. I can't go outside on hot days and can't really tolerate alot of heat ,at night I have to keep my air conditioner on 70 and I have two fans pointing on me a night time ,hope you get well soon

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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