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PEMprincess

658d

How in the world does someone with multiple syndromes work or go to university? :(

Top reply
    • Belugabear

      641d

      @PEMprincess yep I was a perfectionist too! It’s definitely been hard seeing all of my friends graduate, but I’m allowing myself to feel sad, especially since I know it will be worth getting my degree in the end! If you ever want to talk please message me!

    • MatchaBunn

      653d

      I’m finding it hard to balance that, as well. Sometimes I can’t remember how I managed to work (at one point two jobs), do college courses, and have a social life. But I realized that I cannot work at that level without burning myself out. I try to make accommodations for myself in those spaces; I got my bachelor’s and master’s degrees online, I limit my shifts at work and take breaks when I need to, and I plan things in advance whenever possible.

      • PEMprincess

        641d

        @MatchaBunn Online school is great I’m going to look into that. I’ve also got a lot of anxiety centered around choosing a major/career because my body is so unreliable in “real world” work spaces. My last clock in job, I was able to reduce my work schedule to two days a week & my condition was unfortunately still too disruptive to maintain it. Can you relate/any tips for choosing healthy career path?

    • Lew_Bear

      654d

      I wonder the same thing every day. I’m just hoping they discover treatments that help enough to get back to my job

      • PEMprincess

        641d

        @Lew_Bear yes! I haven’t skipped a full year of work or schooling yet but each time I go the duration is shorter and shorter, and more taxing on my body. I do get defeated when I think about the way the world wasn’t designed for people like us despite there being such a large disabled community. I’m also grateful for so many lessons I’ve learned, so just maybe we will be the group that inspires the change 💝 Happy healing.

    • MissLucy_101719

      654d

      Definitely take it at your own pace!

    • Belugabear

      658d

      I’m a university student and need to be part time. It’s taking me forever to finish my schooling but it’s not a race!

      • PEMprincess

        641d

        @Belugabear If you were a type A personality or perfectionist of any sort prior to having medical complications, grasping that our goals are not a race is one of the biggest (and arguably scariest, lol) things to fully accept. Still working on falling in love with the actual process/journey toward the goals I have & anchoring myself to the present moment. Thank you for this!

        • Belugabear

          641d

          @PEMprincess yep I was a perfectionist too! It’s definitely been hard seeing all of my friends graduate, but I’m allowing myself to feel sad, especially since I know it will be worth getting my degree in the end! If you ever want to talk please message me!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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