Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

DizzyAllTheTime

Updated 11mo ago

Managing Life with POTS: Share Your Experience

What does POTS look like for you, and how have you started managing life after being diagnosed?

Can you help? Connect today

avatar

Sara_Jean

2y

It’s miserable I don’t know where to start
avatar

Philo_The_Great

2y

For me, it’s scary and painful, especially since i have to figure everything out myself. It’s hard to know when a spell comes, and what causes it for me.
avatar

Alexiz_

2y

It’s frustrating and painful. I know for me heat really makes my symptoms worse. But other than that I’ve been lost. It’s really hard to know why I’m suddenly flaring up.
avatar

Philo_The_Great

2y

ya, I’ve noticed heat does the same for me as well
avatar

NewYork

2y

A daily battle with myself, constantly drinking water and eating helps
avatar

HangingInThere

2y

10 years of pots here. Get compression stockings. Check for “Hypoglycemic pots” with a Glucose censor patch, since hypoglycemia causes dizziness, hot flashes when your sugar drops. Also arrange your living space so you don’t have to bend over frequently. And if you do buy a “grabber stick”. Measure your sleep with an OURA RING. Try to sleep 7 hours. It will make a difference. Take a lunch box with you everywhere. Any questions, contact me. Hope this helps.
avatar

rylesmcgyles

2y

It’s miserable and exhausting. I’ve had worsening symptoms for over 7 years now, and I’m still going to doctors for answers. It’s mentally draining having to explain your symptoms over and over for doctors to simply dismiss you because they don’t know enough. I carry around my medical history and symptom list to every doctor I go to, because at this point it’s easier to just give them the paper instead of listing it off. A lot of people around me don’t believe me, or think I’m making it worse then it is, when in reality I feel like I downplay just how bad it is. It’s just…tiring.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc