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Chroniclyme

693d

Dear EDS warriors, How do you stop hip subluxations? I have noticed having some type of one 2-4 times a day and idk if that is too much or what I should do?

Top reply
    • Rockerstylist

      691d

      I got a brace from Amazon that seems to help.

    • Macemoments

      691d

      I do wear a strong brace on my right knee if I am going to be up for long periods. The only thing is it can cause muscle spasms in my calf then later. I use magnesium cream on it.

    • Rockerstylist

      691d

      I got a brace from Amazon that seems to help.

      • Chroniclyme

        691d

        @Rockerstylist a brace for your hips?

    • DanceJoy

      692d

      I wear a pair of exercise /yoga/leggings underneath my clothing. It provides feedback to my brain as to where my body is in space and the mild compression helps to keep my knees and hips where they're supposed to be. Without the leggings it feels like my bones are separating a bit.

      • Chroniclyme

        692d

        @DanceJoy oh wow. For me it just happens sometimes when I go to sit down or bend over or just randomly or when I sleep. Idk how to stop myself lol

        • DanceJoy

          692d

          @Chroniclyme I think mine just sublux. They're constantly popping and clicking. 🤷‍♀️ But, I feel better with the leggings.

    • Wiseowl213

      692d

      Take note of when/how they happen and try to change the way you are doing the thing. Slow down and move more carefully if possible

    • Macemoments

      692d

      Hi! Have you tried PT? A great Pt will help a lot. I also bought a tempra pedic mattress & it helped. I know it’s expensive but a good quality foam mattress topper might do. I would wake up from pain like someone was pulling my leg out of socket. Also if I am standing long somewhere I wear good shoes for support. Especially cooking, kitchen etc. I wear Brooks tennis shoes. Again expensive but mine last years. Mine do it walking on uneven surfaces. I fall a lot. I know I will need replacements at some point. Getting my 1st knee done in fall.

      • Chroniclyme

        692d

        @Macemoments I have but not specifically for this issue. I am still waiting to be officially diagnosed. But my hips are always in so much pain. Thank you for the advice. Mine do it just at random or even when I am trying to get comfortable in bed and over extend my legs out.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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