Managing Fibro Flares: Seeking Advice and Support

Hi all! I’m excited to join this community and start making connections. My questions right now are: • What activities do you enjoy doing during a low-moderate fibro flare? (For example, this evening I am experiencing low-moderate pain & exhaustion. It’s not severe enough to go to sleep early (7/8pm), but it is painful/exhausting enough to make it difficult to read, want to go out with friends, etc.) • Also, is there anything that you have found helpful for pain reduction or to restore energy during a flare? I have several medications & preventative options, but when a flare occurs, I am not sure what to do!

Your answer

Foxlover

2y ago

I also have Crohn’s along with fibromyalgia, usually my Crohn’s is in remission my fibromyalgia isn’t that bad. In that case I like dancing. Right now I’m trying to get into remission so I can’t do that as much, but I walk or use my biking machine at home. I find stretching can be a little helpful or using a CBD cream.

OuchiePrincess

2y ago

I have found that you can kind of “cheat” a flare by having a sugar free energy drink with vitamins- but it is a TEMPORARY fix at best. This method can allow you the duration of the effects of the energy drink to get more physical activities done that you couldn’t otherwise do without. I don’t think this is particularly healthy but it can be useful in case of emergency- please take more care of yourself afterwards (after the effects of the drink have worn off), hydrate and rest accordingly, and don’t do this too often!

OuchiePrincess

2y ago

I like re-watching favorite tv shows, drawing, journaling, coloring, podcasts, and passively watching streamers on twitch when I want to do something but don’t have many physical spoons

Lyndi

2y ago

@expelliarmus — for the patches, so you use the ones with capsaicin, lidocaine, the “hot” one, or the regular one (w/ camphor, methyl salicylate, & menthol)

Abigirl

2y ago

Honestly, nicotine helps me (I’m trying to get off it) so chewing nicotine gum is helping me atm.

Expelliarmus

2y ago

Heated or frozen rice bags are super helpful. OTC Salonpas pain patches (but do NOT use heat with them), CBD/THC lotion, stretching, soaking in tub, napping whenever I feel I need to, and snuggling my dogs.

Zentoast

2y ago

I find with those flares, forcing myself to do something light like stretching, going for a walk or low yoga really helps. Hard to muscle through but movement helps the pain.

LaurElizabeth

2y ago

I know it’s small but I love my heated blanket

Anxiouswalrus

2y ago

I watch a lot of TV. I’m really liking PBS Masterpiece shows right now. For pain reduction, sometimes my weighted blanket helps

Aja

2y ago

Typically when I’m not having too much pain I spend time at home watching YouTube or movies. I also haven’t found anything that helps during a flare except sleeping (which only helps sometimes). I’m all ears if someone has something to try during a flare 😅

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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