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Eliana_B

706d

How long have you had Epilepsy? How do you manage it? How does it affect your day to day life?

Top reply
    • sasscass

      251d

      @Phrrya I also am more humourous after I've had a seizure, people have asked me my name 20 mins after the fit and sometimes I actually think it's funny to say their name not mine ... It's actually quite mean when I realise they're worried about me and I'm joking about 😕😍

    • Taetae

      702d

      I had epilepsy for 7 years now and I just manage it with my medication and the side effects can affect my daily life and not being able to certain things

    • Amiela

      704d

      Mine were under control until March 5 th. Now they are so bad I can't work I go to the neurologist June 1st I sure hope he can figure out something

    • Phrrya

      704d

      I have had epilepsy (since I was diagnosed) for 9 years. Don't know if I've had it all my life or if it came out of nowhere. I manage my epilepsy by having a 'service' cat (she's not licensed). Or I do something I like to do such as drawing, singing, watch movies/tv shows, cuddle with my cat, etc. It only affects the schedule you have and possibly the mood. I've been told I'm lucky because most people when the come out of a seizure during their postictal state they're angry and yelling at people while I'm kinda the funny type of weird. I'm in a good mood of tired but I have a lot of things that are complicated sometimes because I do get irritated just not as badly as others. If you want to talk more I'll be more than happy to talk with you and help if need be 😊

      • sasscass

        251d

        @Phrrya I also am more humourous after I've had a seizure, people have asked me my name 20 mins after the fit and sometimes I actually think it's funny to say their name not mine ... It's actually quite mean when I realise they're worried about me and I'm joking about 😕😍

    • Amie2001

      704d

      I’ve had Epilepsy for 8 years. I really have no way that I manage it I’m always anxious about it tbh. But taking my medicine daily around the same time seems to control my seizures if I don’t take my medicine in 2-3 days I’ll have one. So, I always stay on track with it. If I feel weird or have a aura type feeling I’ll sit down and drink some water.

    • Sn0wWillow

      704d

      I've had my epilepsy for 13 years now, I basically manage it by taking medication and for me personally certain lights hurt my eyes so I try to avoid those type of lights. And for me personally it does not affect my day to day basis unless it's night and then certain lights will of course hurt my eyes

    • signature_sauce

      704d

      i’ve had epilepsy for about 14 years. the first 9 were only absence seizures which were misdiagnosed as adhd. when i was 16 i started having grand mal seizures and i have had both ever since then. i’m about to turn 21 in a few days. i finally found meds that can control them though

      • signature_sauce

        704d

        @signature_sauce before they were under control i would have to miss school, work, and other events because i could put myself and others into danger and i would be really embarrassed and sick. i couldn’t drive until i was 18 because of the seizures. it also took a big toll on my mental health. now that they are under control i just have to worry about taking my meds

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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