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tatertot731

1y ago

Managing Dysautonomia Symptoms: Tips and Tricks

how does everyone better manage their Dysautonomia symptoms on the daily? my main ones are heat and exercise intolerance and dizziness… they’ve gotten worse recently and i want to find more ways to accommodate myself at least at home.

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Art_therapy

1y ago

For my heat issues i try to take cool showers or baths. (The cool part being important because i don’t want to make myself too cold or ill start shivering and wear myself out that way). If you cant take a shower or bath then try running your forearms and face/neck under cold water. I usually find some relief that way. I hope this helps ❤️
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tatertot731

1y ago

thank u i definitely will
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Lunarr

1y ago

I see on your profile that you add salt to your food. Have you ever tried taking straight up salt tablets, instead? My cardiologist recommended that I start on three 1g sodium chloride tablets a day to get a more consistent dosage and that has very surprisingly helped me. I wouldn't say I feel better, but I feel different for sure in a more managable way. Less debilitating fatigue with intense dizziness and more average tiredness with moderate dizziness. So that might be something to ask your doctor about I've also had success with midodrine, if you haven't tried that already. Some people get side effects they can't tolerate but it's helped me and a lot of others. Taking it gives me more stamina to where I can actually exercise on my recumbent bike every once and while without keeling over or almost passing out lol, I don't think I could function day to day without it I haven't found a solution for heat intolerance yet aside from "don't be in the heat" but rechargable neck fans certainly help and I've heard some praise for microfiber towels as well. Staying hydrated, of course, helps with everything. And taking frequent breaks. Lying down for 15 minutes every few hours helps me
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tatertot731

1y ago

i’ll definitely try to look into the salt tabs and if i’m able to do that. and it’s hard for me with blood pressure meds is that my bp is so random. my dr considered giving me one for it but he didn’t think it would be beneficial. i’m desperate for things to work but i don’t feel it’s worth it to deal with more doctors.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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