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How do you manage day to day?
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Postural Orthostatic Tachycardia Syndrome (POTS)
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One thing that was helpful (at the very least to my mental health) was taking things one day at a time with each day being its own separate thing. What happened yesterday is in the past. Today could be better. Today could be worse. I wake up and see how I'm doing and plan accordingly. On my good days, I could manage to cook a meal, do light housework (such as vacuum or mop), or spend a bit of time in my garden. On bad days, I would be forced to stay in bed and crawl the 10 ft to the bathroom so I wouldn't pass out. Hydrate, monitor, and find an in bed activity to occupy myself. After 3 1/2 years I finally was able to see a knowledgeable doctor and found the medication that worked best for me. My symptoms have significantly improved but there was a time where I'd just lay in bed and cry because I didn't think it was going to get any better.
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@CoffeeAndDogs I 100% agree, what day at a time is the best way to approach any illness. When we over think and try to do too much, it just makes matters and symptoms worse. I struggled for a years of trying to figure it out. Finally got a POTS diagnoses after 10 years of struggling. Trying to figure it out. Functional doctors have really helped me. I’m not 100% but I haven’t been nervous like I was. I would be scared to go out of the house cause I would have a panic attack over the littlest things. If only I knew my hormones were so out of balance and that I had POTS I could have gotten better sooner. But life is a learning experience, all we can do is gain knowledge and push through the struggles. That’s what makes us wiser and smarter.
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@Paigey I had to wait 10 years too! Does anyone take steroids for it?
Take it as easy as you can. Stay hydrated and keep your blood sugar up by snacking on things like nuts
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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