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Keikochan

Updated 10mo ago

Managing Chronic Illness: My Experience with POTS and Fibromyalgia

hi guys, sorry I've been off this for a while. you know how things get..I've been going through a really rough period but I'm still pushing through. so this last year I was diagnosed with Hypovolemic POTS & Fibromyalgia. For some background I am also extremely flexible (also known as hypermobile) which leads me and many of my doctor's to belive I have EDS. However, even though these doctors think I have it, they have been unable to diagnose me with it due to it not being their specialty. I live on a small island so I'd have to travel or find a doctor willing to do telehealth with me. This has been extremely frustrating but I also understand that it will take time. Anyways.. THINGS THAT WORK!! Okay guys you ready for the secret? Weed. yep you heard me. You have POTS? smoke some pot. It has really improved my quality of life since I've been on it. I'm able to be more comfortable, less in pain, it's easier to eat especially when I'm always nauseous, it makes it easier to rest especially on a flare day, and it improves your overall mood. However this is not a cure all. Some other things that I have been doing that have drastically helped me have been the following: Hydrate ALOT, intake salt by whatever means necessary (I like to steal the small salt packets from the cinema), mobility aids (crutches/wheelchairs), listen to your body because it will tell you what it needs, stretch, exercise daily even if it's just a light body weight routine, sleep a lot (if u have problems with this then please refer back to my first remedy), IF you are struggling with depression, anxiety, PTSD, and BPD like I am then I highly recommend seeing a psychiatrist who can help manage your medicine and see a therapist, it's completely up to you how often you see them. For me personally I see my therapist once a week and my psychiatrist once a month. Alright I think I've typed a lot so I'm going to shut up now but on this last note... if you are struggling please reach out. <3 you aren't alone

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Foxtail

1y

Weed relaxes the body and lowers blood pressure and can cause other POTS worsening affects but it does definitely have health benefits

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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