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Opal

831d

Has anyone heard of MALS as a cause of hyper POTS?? I’m going to a doctor for it tomorrow but it seems if you have hyper pots, EDS, and gastric symptoms it’s likely the cause! And can be fixed with a lapro surgery! Basically the celiac artery is compressed and causing regulation probs

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    • Opal

      827d

      I had my gallbladder out as well!

    • Opal

      827d

      I had my gallbladder out as well!

    • Opal

      827d

      https://youtu.be/V502lgPVmdw Link to vid with more info

    • Opal

      827d

      Thank you guys for sharing your experience as I highly suspect I will be going through this surgery as well! 💕

    • Opal

      827d

      Jazzy! Literally same!!! This is exactly why I wanted to put this info out here!! I knew I had pots have recently been diagnosed for EDS and am at a clinic in Herndon VA, the children’s heart Institute that will be checking me for MALS and provides the release surgery!! Google dr. Abdallah in Herndon VA for more info there is a YouTube vid I will try to link it

    • Junemarie

      827d

      I had my MALS release surgery two years ago and it got rid of most of my pain after eating. The surgery itself however was a tough recovery, as it is abdominal surgery and EDS make it a little harder to heal

    • Messymexi

      827d

      I've actually had two MALS releases a year apart from each other and got some relief. I maybe have MALS pain 30% of the time now after eating

    • Jazzypixy

      827d

      I'm going to start with, this is my second day on this app. I am going to second with, I have chronic stomach pain and they are back and forth on if I have gasteoparesis or not. I also have POTS that had worsened lately. I have not been diagnosed with EDS. Honestly I'd never heard of it till I googled it. I have had many doctors mention I have hyper mobility, I have always bruised so easy, I have injured my ankle so many times I have arthritis in it, trouble controlling my bladder and bowels, lately I've been struggling to stay warm and I've already had my gallbladder out plus had a CRP test done that was 10.15 (max normal is 3) and concerned my doctor greatly. This information may have changed my life. "Curable" is never something I could have never imagined. I've been looking for one answer for so long. Obv, I can't say this is 100% fact yet. But the idea of there even being 2 curable condition that causes almost all of my physical ones... Gives me so much hope

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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