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Bubbie

778d

How do you manage your lymphedema?

Top reply
    • Flossie

      634d

      To everyone, losing weight and low sodium diet is VERY helpful.

    • Flossie

      634d

      To everyone, losing weight and low sodium diet is VERY helpful.

    • Bubbie

      768d

      How often do you need to use it? How does lymphedema impact your daily living?

    • MrsClark37

      768d

      I received a device and thankfully covered by my crappy insurance from a company called Tactile Medical and how it helps me is it's almost like a space suit, so to speak, & it goes on whichever part of your body that you're having Lymphedema. For me, it's around my waist, down through both my lower extremities. And it's like a very nice gentle massage.

    • GJ

      773d

      Oh gosh o am sorry. I have it in my right leg but haven’t been infected. I can absolutely see why you are pursuing surgery. Sorry you have to deal with this!

    • WellnessCoach

      773d

      The swelling at the ankles in top of foot become one piece it actually looks like one super huge ball and if I don’t keep the compression on it the skin breaks open the weeping gets worse I get staff infection and this cycle just continues to repeat. I’m trying to find a decent vascular surgeon that does it as a specialty as soon as this remaining infection goes away

    • WellnessCoach

      773d

      Yes because my ankles and legs are swollen so bad it broke the skin open with Addison disease also it makes it very difficult for me to heal I have to keep compression wraps on 24 seven very rarely do I take them off for a day because then I get severe swelling at the Ankles

    • Bubbie

      773d

      From lymphedema? Seriously?

    • WellnessCoach

      773d

      ❤️ has me in an urgent state with threats of amputation 😥

    • Bubbie

      776d

      I’m meeting with a vascular surgeon on Tuesday. I can’t live like this and it’s only been two months for me. You’re all so brave for dealing with this for so long. I need a permanent solution.

    • RedandBlackFan

      776d

      Yes it works until I put my legs down and they begin to swell again. They gave me compression socks and these Velcro things to wear to keep it down. Other than that they didn’t give me any more options

      • beanbean

        671d

        @RedandBlackFan sounds about like my doctor who said I needed to find a desk job. I live in a small town. So not many of those. So I asked him if he was hiring 😆 sorry stupid is as stupid does. I thought that was a crap answer to my problems as well. Since that's all he had to say about me being able to work In a convenience/ gas station.

        • Andi71

          669d

          @beanbean i can’t even do a sit down job. My lymphedema acts up and my legs and feet get swollen. Plus i have arthritis on my spine. I’m in constant pain. I can only sit for a few minutes at a time. I have to lay down most of the day

    • WarriorJam

      777d

      I don’t have a compression machine but I have reduction kits and wraps, also making sure you move around a lot and drinking lots of water is a big help.

    • GJ

      777d

      It helps my swelling when I’m in it - but as soon as I get back on my feet it goes right back up. Manual drainage works some but again - as soon as I get on my feet …

    • Andi71

      777d

      I have the compression boots too… not sure I see any difference to be honest. It feels good when I use it. But swelling doesn’t go away

    • GJ

      777d

      I have a compression machine too. Didn’t use it last night and paying for it today.

    • Bubbie

      777d

      That sounds awful? I’m so sorry you’re struggling with this disease. Does the machine work? How long does it keep the swelling away? Does your doctor give you other options?

    • RedandBlackFan

      777d

      Bed ridden ugh auto correct

    • RedandBlackFan

      777d

      I’m med ridden. I have a machine that I have to zip my legs up in and it inflates and takes the swelling out

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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