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NaySoRock

758d

Hello! Has anyone been diagnosed with Lupus and prescribed Plaquenil but stopped taking it due to bad side effects? What are you doing instead? Thanks in advance šŸ™‚

Top reply
    • Miss_Marilyn

      741d

      I get tired easy . That bothers me

    • Miss_Marilyn

      741d

      I get tired easy . That bothers me

    • Miss_Marilyn

      741d

      I have been on Hydroxchlorquine for years. I must tolerate it pretty good but do have some dizziness from time to time.

    • TrixNY

      746d

      I have to take Plaquenil with food - as in at the same moment - or I fee nauseous and feverish. For me itā€™s been worth it. Iā€™ve been on it 4 years now and my blood work and symptoms stabilized after the first 6 months. If I wasnā€™t seeing any benefits I would stop it immediately.

    • kab

      746d

      Hi! I am on hydroxychloriquine and was having terrible GI issues so I spaced out my dosing and itā€™s getting better. My friend with lupus takes chloroquine because he couldnā€™t tolerate hydroxychloriquine and is doing much better

    • karinad

      747d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • Thatgirl

      754d

      Iā€™m surprised no one has really responded to this. Have you been on it long? If you are looking for some tips of ways to not have such harsh side effects. I might be able to help, depending on the side effects. If itā€™s nausea and hot flashes Iā€™m your girl. Feel free to message me, Iā€™ve been on Hydroxychkoroquine (plaquenil ) for about 6 years

      • NaySoRock

        742d

        @Thatgirl thanks for the response. I was on it for 9 months and it was my my symptoms actually got worse. The swelling, the fatigue, the rashes, all got worse when I took the medicine. I stopped it around the time I made this post and honestly feel so much better

        • Thatgirl

          742d

          @NaySoRock Iā€™m so glad you are doing better!!

    • Air82

      754d

      I take hydroxychloroquine. šŸ˜„

    • Thatgirl

      757d

      *No side effects from the Azathirophrine. Hydroxychloroquine is a beast.

    • Thatgirl

      757d

      In addition to Hydroxychloroquine, I take Azathirpine (sp?) I had no side effects from it. It is a harsher medication, and they make you take a blood test quarterly while you are on it. They have to make sure it isnā€™t building up in your system. Iā€™ve been on it for six years and have never had an issue.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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