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When did you get diagnosed with Lupus?

Vic782

701d

I’ve never been officially diagnosed with Lupus. My biological father’s side of the family has it a lot with the women. I have a lot of the symptoms and my doctor always says I’m too young to worry about it. Well- I’m 20 now and I’m curious how old others were when they finally got an answer? What was the thing that got you diagnosed? Is it rude to assume I have something that others struggle with even though I have the symptoms? Thanks <3

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Systemic Lupus Erythematosus (SLE)

Asthma

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Top reply
    • Mizzshiree

      700d

      I was diagnosed with lupus at 22 I got it from my father’s side as well I was devastated I could no longer enjoy the sun. I can deal with everything else that goes along with lupus but me not being able to be out in the sun is by far the worse thing ever for me

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    • KatsKickingIt

      700d

      I 100% agree!

      0

      Reply
    • Mizzshiree

      700d

      I was diagnosed with lupus at 22 I got it from my father’s side as well I was devastated I could no longer enjoy the sun. I can deal with everything else that goes along with lupus but me not being able to be out in the sun is by far the worse thing ever for me

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    • Zarla

      700d

      I was diagnosed at 21 and wasn't prepared

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    • Kalyx

      701d

      I was diagnosed at 22. You’re really never too young.

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    • Mizztee63

      701d

      You’re not too young to be concerned about your health especially if it runs in the family and if you’re already experiencing some minor symptoms. I started getting sick when I was a very young girl and through my teens into my 20s I frequently battled upper respiratory infections and asthma. My body ached all the time but I never paid much attention to it. Now my youngest daughter who is in her early 20s also was recently diagnosed with lupus based on her recent ANA results and symptoms. Had I known about this illness, I would have gotten checked out a lot sooner. It doesn’t hurt to be vigilant.

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      • Vic782

        701d

        @Mizztee63 I have had symptoms for years. You look up lupus and it’s like an encyclopedia of my life XD but the test they did on me came back negative- my aunt wasn’t diagnosed until her 30’s because it only showed up positive during flair ups.

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        • Mizztee63

          701d

          @Vic782 I know exactly what you mean. I think it should totally be up to the patient to decide on what course of action to take because no one knows our bodies better than we do. It has taken me several years to finally get a diagnosis when I already knew years prior that something was very wrong. Trust your gut.

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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