See Alike in...

Alike App

Browser

Igglepiggle

478d

Just been officially diagnosed with lupus 💜

Top reply
    • JoJo88

      138d

      Stay positive. Ice packs can help with inflammation pain my Chiro said ice at night and heat like hot shower or hot wash cloths for morning. And mint oils roll on any wear hurts help more tolerance to what hurts to

    • JoJo88

      138d

      Stay positive. Ice packs can help with inflammation pain my Chiro said ice at night and heat like hot shower or hot wash cloths for morning. And mint oils roll on any wear hurts help more tolerance to what hurts to

    • JoJo88

      153d

      Flair ups are not fun when happens. But I found out when stay busy and focus on working out and drinking lots water and not overthink about pain the pain at times is more tolerable. Also helps to talk to people who also have lupus to get feedback. 🤗

      • Igglepiggle

        145d

        @JoJo88 I can’t work out because of recurrent pericarditis and my pain is much more severe than most patients sadly I’m not on pain killers yet but I should be I’m completely disabled from it the pain I experience from inflamed organs and things is excruciating I throw up from the pain and am often bedridden for weeks at a time I’ve just started Azathioprine which I hope helps but I also have a bunch of other conditions and things they think I have that makes stuff much worse

        • JoJo88

          145d

          @Igglepiggle praying for you. Stay positive. Stay hydrated. If can’t work out still go to do light stretches to keep muscles moving and drink lots of water. Stay calm. Know you not alone.

    • Annye

      477d

      Hugs!! 💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion