Hi Shelby! Yes, it took over 10 years to get a diagnosis!! Unfair that we weren't listened to. I am currently on hydroxchlorquine and that helped me a long time ago, but I'm back on it and it takes a few months to work. What kind of infusions and what kind of treatment are you looking for? Something to help with pain?

Hey! I was diagnosed almost a year ago and it was a bit stressful getting diagnosed. My general doctor misdiagnosed me with rosacea and for a couple weeks to maybe a month, the topical ointments didn’t work. Once I asked for a dermatologist, they took some blood work and did a biopsy and later diagnosed me with lupus months after my symptoms. I was put in hydroxychloroquine as well and it has help with my joint pain, my hair growing back, and my fatigue. I think it took s couple weeks to maybe s month to feel better once taking the medicine because before then I had fevers, aches, pains, and o couldn’t walk nor eat little to none, but now I’m much better than before. Still struggling, but making a way. I hope things get better for you :)

Took two years and I can’t afford it

It took maybe a year to get diagnosed after ending up in the ER for my symptoms. I’m on plaquenil too but I can’t tell if it does anything honestly. I’ve been taking it for a few years, and my symptoms have decreased in that time so maybe it does help

❤️

It took over twenty years for me to get diagnosed and it was a dermatologist who caught it. She started me.on Plaque nil right away and that keeps the rashes at bay. Not the joint pain though. I have high RA numbers,too, so I probably am getting it from a couple different directions. But no one even took.bloodwork to see if there was something going on. My PCP at the time gave me steroid shots and prednisone to quiet the rash down, but that wasn't working well after so many years. All it took for the dermatologist to take a.biopsy was to see the rashes and she called it even before the results came back. All I can say is, if you're not getting answers for pain, or skin problems, or whatever, go to a different doctor. I'm glad I did. I may have lupus, but at least I know what's wrong with me now!