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Shelbyrose

876d

Hi I’m Shelby :)) Im recently diagnosed with lupus! Finally! Was it hard for you guys to get diagnosed?? It was hard for me to find someone to listen. And what treatment options do you all recommend? Im currently on hydroxychloroquine and honestly it’s making my pain a lot worse and I’m not noticing and changes. My doctor wants me to start getting infusions but I can’t afford it! Any advice ?

Top reply
    • Jamieloup

      861d

      ❤️

    • Jamieloup

      861d

      ❤️

    • magnoliabb

      870d

      It took maybe a year to get diagnosed after ending up in the ER for my symptoms. I’m on plaquenil too but I can’t tell if it does anything honestly. I’ve been taking it for a few years, and my symptoms have decreased in that time so maybe it does help

    • Jamieloup

      875d

      Took two years and I can’t afford it

    • Heyo

      876d

      Hey! I was diagnosed almost a year ago and it was a bit stressful getting diagnosed. My general doctor misdiagnosed me with rosacea and for a couple weeks to maybe a month, the topical ointments didn’t work. Once I asked for a dermatologist, they took some blood work and did a biopsy and later diagnosed me with lupus months after my symptoms. I was put in hydroxychloroquine as well and it has help with my joint pain, my hair growing back, and my fatigue. I think it took s couple weeks to maybe s month to feel better once taking the medicine because before then I had fevers, aches, pains, and o couldn’t walk nor eat little to none, but now I’m much better than before. Still struggling, but making a way. I hope things get better for you :)

    • alienbaby

      876d

      Hi Shelby! Yes, it took over 10 years to get a diagnosis!! Unfair that we weren't listened to. I am currently on hydroxchlorquine and that helped me a long time ago, but I'm back on it and it takes a few months to work. What kind of infusions and what kind of treatment are you looking for? Something to help with pain?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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