Recently Diagnosed with Lupus, Need Advice!

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It took maybe a year to get diagnosed after ending up in the ER for my symptoms. I’m on plaquenil too but I can’t tell if it does anything honestly. I’ve been taking it for a few years, and my symptoms have decreased in that time so maybe it does help

Took two years and I can’t afford it

Hey! I was diagnosed almost a year ago and it was a bit stressful getting diagnosed. My general doctor misdiagnosed me with rosacea and for a couple weeks to maybe a month, the topical ointments didn’t work. Once I asked for a dermatologist, they took some blood work and did a biopsy and later diagnosed me with lupus months after my symptoms. I was put in hydroxychloroquine as well and it has help with my joint pain, my hair growing back, and my fatigue. I think it took s couple weeks to maybe s month to feel better once taking the medicine because before then I had fevers, aches, pains, and o couldn’t walk nor eat little to none, but now I’m much better than before. Still struggling, but making a way. I hope things get better for you :)

Hi Shelby! Yes, it took over 10 years to get a diagnosis!! Unfair that we weren't listened to. I am currently on hydroxchlorquine and that helped me a long time ago, but I'm back on it and it takes a few months to work. What kind of infusions and what kind of treatment are you looking for? Something to help with pain?