Struggling with LS and Sexual Health

I've been diagnosed with LS since I was 3 years old. I was prescribed the classic creams, my symptoms lessened, and I stopped. Then, when I was 18 and became sexually active, I realized that I had had a flare up worsening for years. As a child I never fully understood what a flare up meant; I always thought certain symptoms were just a part of life. I believe that my lack of treating my flare up interruption in my vaginal development as a whole, with clitoral and labial fusing. Basically, I don't have a clitoral hood or a labia minora. My clitorus is underneath my fused hood and can never come out, so I can't feel anything there. I never knew any of this was abnormal until i became sexually active, and now it is most likely irreversible. Has anyone else experienced clitoral fusion? Have you been able to manage your symptoms and how? I have been looking into surgery but it seems very risky.