See Alike in...

Alike App

Browser

A_Delicate_Flower

833d

Is anyone familiar with Low Dose Naltrexone (LDN)? I started it about a month ago to see if it would help my pains/recovery time. The Dr I got it from says his fibromyalgia patients do well on it. I have EDS and CFS but I don't think I have fibro. Maybe though. Doesn't seem like there is much online in the way of research but would be nice to hear of success stories. Plus side is that I don't have any side effects and I do think it's boosting my mood a little in that it's easier to maintain a positive attitude and not get so overwhelmed. I don't think that was the actual intention haha. also could be coincidental given that it's only been a month. I'm also concerned bc I'm going to get pregnant later this year (despite everything) and wonder about being on it during pregnancy. I did find a Dr overseas who uses it in his fertility clinic successfully but I'd still like to hear a first hand account if there are any here. Thanks I'm advance!

Top reply
    • A_Delicate_Flower

      827d

      Very helpful comments! Thank you!🙏 The only thing I've noticed so far is that my (self diagnosed) PTSD is gone. I noticed that when I had a flare up this past week, I didn't mentally spiral at any point. I am finding it easier to stay present and feel more in control of how I'm feeling emotionally at any point. Overall I feel less anxious. Seems like that is a good enough reason to stay on it for me!

    • A_Delicate_Flower

      827d

      Very helpful comments! Thank you!🙏 The only thing I've noticed so far is that my (self diagnosed) PTSD is gone. I noticed that when I had a flare up this past week, I didn't mentally spiral at any point. I am finding it easier to stay present and feel more in control of how I'm feeling emotionally at any point. Overall I feel less anxious. Seems like that is a good enough reason to stay on it for me!

    • Ripple

      828d

      Hi, I have EDS and am on LDN and love it. There’s a doctor near me who gives it to most of the EDS patients and some do amazing and some it doesn’t help at all. I couldn’t tell if it was helping or not until the pharmacy had issues and I couldn’t take it for a week. Suddenly any time something or someone touched me, it hurt. That’s when I realized it helped a lot with those symptoms. Keep in mind that it takes a long time to build up in your system so it’s effect may not be obvious, especially the first few months.

    • DancingZebra

      828d

      I have some and don’t use it all the time anymore, just when I have a flare up but I love it.

    • Knightstarr

      833d

      https://youtu.be/z0p0ykSzy9o

    • Knightstarr

      833d

      I have been on LDN for like 2 years. I have fibromyalgia and Ehlers-Danlos Syndrome. It has helped me a lot. There is a YouTube video that shows exactly what it does and stuff, I will look it up for you

    • MaggieNoelle

      833d

      I’ve been using LDN for about 6 months now. I’ve had no side affects. I use it for inflammation/aches and pains caused by POTS and autoimmune issues. My doctor was able to send it to an online pharmacy based in Canada. I order online 👍

    • Doglover25006

      833d

      LDN is still being researched as far as I understand. Using it for fibro is an off label use of the drug. But it is very effective for many fibro patients myself included. It cut my pain from an 8/10 to a 4/10 on average and adding lyrica on top of the LDN most days im pain free and max pain of 2/10 unless I do something major to trigger a flare. It’s a low risk medication with very few side effects. I get every side effect there is and then some with most meds and I have no negative side effects from LDN. Not sure about taking it while pregnant though as I don’t yet have children and am not trying to at this time.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion