See Alike in...

Alike App

Browser

princessbun

679d

I finally got prescribed Low-Dose Naltrexone for chronic fatigue syndrome. (I also have POTS and IBS/SIBO) I am wondering who else has any experience with this medication. It is pretty pricey where I am at but I am so willing to try it. I ask because I was prescribed 4.5 while I heard some people start at .25, .5, so on.. I will be picking it up from the compounding pharmacy soon. Thanks everyone!

Top reply
    • Mcmeadow

      438d

      @princessbun I tried it for about 3 months. It didn't help much, although I couldn't raise the dose because I learned that LDN can cause herx reactions, which it did for me.

    • squigglybeanz

      647d

      4.5 is an extremely high dose. I started at like .25 lol. It did not work for me and made me very tired, but I am part of a Facebook group who say that it changed their lives! My mom’s fatigue had also improved drastically since being on LDN! Everyone is different, but I definitely would start on a much lower dose and then titrate up. It can cause some pretty nasty symptoms if you take too much right away! Crossing my fingers and praying it works for you ❤️❤️

    • Mcmeadow

      655d

      My doctor suggested this to me in the office just the other day and I was thinking of doing it. Should I try it?

      • princessbun

        647d

        @Mcmeadow it's been a month so far and I havent noticed much other than I'm taking my salt pills less.

        • Mcmeadow

          438d

          @princessbun I tried it for about 3 months. It didn't help much, although I couldn't raise the dose because I learned that LDN can cause herx reactions, which it did for me.

    • MomofRock

      676d

      Can I ask, how does this medicine work?

      • princessbun

        662d

        @MomofRock check out ldn research trust website it explains it pretty nicely, better than I could!

    • Babypossum

      677d

      I was just prescribed this too. I hope it helps the both of us 😸 I was told to start at 0.5 and increase gradually but everyone’s dosing situation is different.

    • Belugabear

      679d

      Are they having you start at 4.5?????? You really need to titrate up. I’m no doctor of course but beware of extra side effects starting at the high dose! I add 0.5 every three days. I’m just getting to the full 4.5 now and it seems to be working!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion