I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants

Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare

They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."

I got diagnosed with chiari pots two unknown autoimmune diseases from the eds

ligamentous laxity is what they thought it was first for me

They thought lupus for me first.

They told me that “people don’t dislocate that much” and I was making it up or being dramatic. Turned out I wasnt

got diagnosed with jhs (joint hypermobility syndrome) and costochondritis and ibs and unlabeled heart issues before my EDS diagnosis

I was recently diagnosed with POTS which I have heard goes hand in hand with EDS we noticed because of my severe tachycardia

I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.