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TwistItTwice

730d

was wondering what other diagnoses people ran into first before getting an EDS diagnoses currently starting that but already stopped on a couple road blocks of course and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around

Top reply
    • Blinky

      724d

      @madd94 ofc!!

    • Blinky

      727d

      I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.

      • madd94

        726d

        @Blinky I have stretch marks behind my knees and always been relatively thin as well! Never crossed my mind to ask my dr about it but now I certainly will. Thanks for sharing 💛

    • Avery_18

      728d

      I was recently diagnosed with POTS which I have heard goes hand in hand with EDS we noticed because of my severe tachycardia

    • AngelArson

      728d

      got diagnosed with jhs (joint hypermobility syndrome) and costochondritis and ibs and unlabeled heart issues before my EDS diagnosis

    • Student_girl

      728d

      They told me that “people don’t dislocate that much” and I was making it up or being dramatic. Turned out I wasnt

    • Strawberrybee

      728d

      They thought lupus for me first.

      • madd94

        727d

        @Strawberrybee Me too. Came very close to accepting the diagnosis despite it never feeling right.

    • lucky777

      728d

      ligamentous laxity is what they thought it was first for me

    • ChiariChick

      728d

      I got diagnosed with chiari pots two unknown autoimmune diseases from the eds

      • ChiariChick

        728d

        @ChiariChick I also have many other conditions.

    • Delirium

      729d

      They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."

    • crunchyoddball

      730d

      Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare

    • Lilac_Night

      730d

      I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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